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Does anyone have chronic myeloid leukemia (CML)?

Blood Cancers & Disorders | Last Active: Feb 14 4:38am | Replies (64)
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@ortina2023

It was a routine CBC prior to my regular 6 month checkup with my primary care doctor. Platelets were 800+ so he ordered a second test days later and they were over 900. Referral to hematologist, first diagnosis was thrombocythemia, more tests, platelets rose to over 2000, test for Philadelphia chromosome was positive, new diagnosis CML, and I was put on hydroxyurea. I’m very glad you’re doing well almost five years past your own diagnosis! And thanks for those links. Information is so helpful at this stage.

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Lori, Volunteer Mentor | @loribmt | Dec 9, 2023

I’m a firm believer in ‘Knowledge is power” but there are so many unhelpful sites with Dr Google that it’s important to stick with credible, reliable sources. It also is helpful talking with others who have been on the same journey.

So please don’t hesitate to be a daily visitor here! Sharing our experiences and having a lifeline gives a certain comfort level when treading in unfamiliar territory.

Wishing you all the best with your upcoming tests and visit with the oncologist. Will you let me know what you find out, please?

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