Tymlos is unaffordable and cardiologist says no to Evenity. What now?

Posted by nancy69 @nancy69, Dec 7, 2023

I switched health plans because Tymlos was on the formulary but when I got the co-pay info it was astounding. Between the Eliquis which I take for AFIB and the Tymlos, I will be at $8k by June 2024 with start date of 01/24. Any reco's?

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Are you under 65? I don't know much about it but apparently there are coupons. I am Medicare-age and got assistance through Radius Assist, which has an income limit. I got 18months free. Have you tried calling Tymlos or Radius?

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How about Forteo; I think it has been around longer than Tymlo (sp)

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There is now a generic form of Forteo (teriparatide).

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I had the same problem. I switched to "Prolia" injections once every 6 mos.

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Why did your cardiologist say no to Evenity? Do you have heart issues? I’m asking because two different endocrinologists recommended it to me, and I still haven’t decided. I have extra heart beats (benign condition) but a history of heart disease in my family.

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Nancy,
you might as well take the best drug, Forteo. There is a generic teriparatide Alvogen Good Rx runs a coupon https://www.goodrx.com/teriparatide?sort_type=price which is still too much. RX Advocates has steep discounts one is free, if you've managed to keep your income low.
If you have part D you'll be eligible for catastropic coverage https://www.medicare.gov/drug-coverage-part-d/costs-for-medicare-drug-coverage/catastrophic-coverage https://therxadvocates.com/

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@lynn59

Why did your cardiologist say no to Evenity? Do you have heart issues? I’m asking because two different endocrinologists recommended it to me, and I still haven’t decided. I have extra heart beats (benign condition) but a history of heart disease in my family.

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I just had my 7th Evenity injections. So far, so good. I met with my cardiologist before I started. He ran some tests and everything was okay. He gave blessing to start evenity.
Because I receive it in an infusion center, Medicare Part B pays 100% of cost.

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@lynn59 I have occasional afib but Evenity is okay by my docs.

I felt better reading the studies on effect on cardiovascular health. There was no difference between the Evenity an placebo group. There was a slight difference between the Evenity and alendronate group, but that might have been because alendronate has a slight positive effect.

I found that ironic since another bisphosphonate, Reclast, was at one time considered a risk for afib!

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I have been taking Tymlos for 15+ months. I take med for irregular hearbeat. My cardio and endo docs have no conerns.

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@windyshores

Are you under 65? I don't know much about it but apparently there are coupons. I am Medicare-age and got assistance through Radius Assist, which has an income limit. I got 18months free. Have you tried calling Tymlos or Radius?

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Hi, I am over 65 and on Medicare. I applied for discount through Radium but was denied. Somehow they think I have too much income. Crazy. Thanks for your quick response and for being such a great help to all of us looking for the best, affordable solution.

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