Had anyone had a gerd test for silent gerd?
Dr Wolf at Cedars LA said he thinks I could have silent gerd and got MAC from aspiration of water with MAC.
Has anyone else taken gerd test?
Thank you,
Cynthia 69
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I recently had a chip inserted during an upper endoscopy to monitor acid levels in the esophagus for 48 hours. It was done at the same time as a colonoscopy so I was out during the procedure. I had no problems with the procedure and am awaiting final results.
I just tested for nighttime GERD last week at NJH. I had a EGD, manometry and 24-Hour pH Impedance tests done, not fun, but considered the gold standard for answers when MAC/BE are involved. Still waiting for final results but I don't think I have a major problem, at this point anyway. The doctor did prescribe Prilosec for 6 weeks because one of the tests that did come back showed mild esophagitis. Beyond that, I had the testing done and now, thankfully, that is over with but very necessary!
I had the same tests at NJH last year. No signs of Gerd whatsoever. Seemed like a waste of resources since my root issue is cavitation on the lung, but oh well.
Ditto that!
There is an association between reflux and bronchiectasis. Most bronchiectasis centers of excellence will test for reflux - both acid and non-acid.
This is an excellent webinar from Dr. Jeffrey King at National Jewish health. Dr. King discusses acid and non-acid reflux. He also discusses Gerd and nonsymptomatic reflux. Best, Linda Esposito
Thank you for caring, Linda. It's still important to have all recommended testing done, whether the results are positive -- or negative. We don't know unless we have them done. Just another necessary puzzle piece as we journey forward!
May I know that test you had to take?
I have not had any test yet
Thank you for sharing this webinar. I continue to be confused as to the root cause of my mild bronchiectasis and subsequent MAC infection, with respiratory reflux being one of the most confusing elements.
Ten years ago, before I was diagnosed with BE/MAC, I saw an ENT for primarily throat symptoms following a respiratory infection. At that time she was a leader in identifying what was then called LPR (laryngo-pharangeal reflux) and did a 24 hour ph monitoring test, diagnosed me with laryngeal reflux and started me on PPI's. I was treated with them on and off for about 4 years. Since my diagnosis and trasferring my care to the pulmonary team at NYU, I consulted with the GI team at NYU to explore the reflux issue and they did an endoscopy and a BRAVO capsule study (a test that the ENT I had seen poo poos) which showed reflux to be not that significant.
This presenter from NJH is doing 22 hour ph study, not the BRAVO, and also presented a case study where the patient was treated with, a commonly used bladder medication, Bethanechol to tighten the esophageal sphincter to prevent (not mask) reflux, and her symptoms resolved. I'm wondering if anyone has thoughts about the varying tests for reflux, which is most definitive for purposes of respiratory reflux influence/causation of BE/MAC and also if anyone has experience using Bethanechol for this purpose.