My husband has been struggling with CMV for a while now. After liver transplant, in January, he was taking large doses of Valcyte and testing for CMV weekly. Once he stopped the valcyte he tested positive so was put back on the Valcyte which works until he has a couple of clear test results and stops the Valcyte. Is is an ongoing cycle. He is seeing an infectious disease doctor in January to see if he has any ideas. He main complaint with the CMV is extreme fatigue.
The post transplant life is a journey you take one day at a time, good luck and try and not let the bumps a long the way get you down.