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@pmm

@rhody89 welcome to the forum. I can certainly echo the recommendations that have been voiced here. Frequent lab analysis…every three months for me until six months ago my hematologist/oncologist suggested we could go 6 months. I go in for labs and CT today as a matter of fact. We do a CT with contrast annually to check for bone lesions. So far, so good. Some do bone biopsy but I have opted to wait on that as my numbers are relatively stable.
You’ll note that there is great variation on the question of whether MGUS is totally benign. Many who post here attribute neuropathy and other symptoms to MGUS. The one thing that is generally agreed upon is that MGUS is not cancer, although it sometimes advances to cancer. So in that respect it is benign.
I think it is rare for a newly diagnosed person to feel no concern or even panic at first. As months, years and even decades for most roll by, it becomes a peripheral annoyance for which we receive the benefit of excellent medical care. Hopefully that will be the trajectory of your journey.
It sounds like you have found a provider in whom you have confidence. Ask lots of questions, live healthy and enjoy your life. Should your MGUS progress, they know how to treat it. There has been great advancement in treatment strategies in just the last decade. Your doctor can talk to you about that if you are so inclined to ask the question.
This forum provides excellent information and peer support. I’m glad you found it.

Patty

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Replies to "@rhody89 welcome to the forum. I can certainly echo the recommendations that have been voiced here...."

I have been diagnosed with mgus but don't fully understand what it is all about