Has she had a CT scan for MALs ( median arcuate ligament syndrome) also known as Dunbars disease and celiac compression syndrome. Very much underdiagnosed and considered to be a rare condition. The only cure and management is surgery. I have been dealing with this since childhood, 58 now. If I can help just one young person avoid life long suffering by getting the word out and sharing my experience , then it's to the good. Be a strong advocate for your child , be vigilant with research , insist on more scans , hopefully they will start looking outside of the " cookie cutter" diagnosis. Praying for a quick resolution!

First, my heart goes out to you and your daughter. I understand the frustration, embarrassment, anxiety and distress that you are experiencing. I have the same thing and am no expert, but maybe I can tell you what has worked for me and you may see something that can help your daughter. For GERD, I purchased a 7" high foam wedge from Amazon for sleeping and this has really helped stopped acid, food, etc. from traveling back through my esophagus into my throat. I eat early and less in the evening. I began eating a Mediterranean diet, began walking, and lost weight. This was very hard for me. 🙄 I also saw a dietitian and she gave me a list of foods to avoid to help with GERD and I am fairly serious about not having spicy food, processed foods, caffeine, chocolate, etc. The list is long, but there are many foods that aren't acidic. It has really helped!

IBS is a nightmare. I can't seem to get a handle on what is causing it. I'm about to try FODMAP. Google it. It's a food elimination system to see what's triggering the constipation, diarrhea, bloating, etc. I hope something here helps.

Thanks much. Your thorough response is greatly appreciated.

I have suffered through the same thing. I have found Align probiotic to help. I also cut dairy out which was extremely helpful. Stress is another huge factor.

I developed similar symptoms. After taking antibiotics to treat SIBO (small intestine bacterial overgrowth), my GI person has suggested the low FODMAP diet, and restricting dairy. I am finding it very helpful. Hope your daughter gets relief soon.

Has your GI doc done testing for H Pylori, SIBO, celiacs or a rare but one to consider, CSID? Unfortunately (or fortunately) many of us with IBS have some significant issues with food intolerances vs actual structural issues. If you can work with a dietician to strip down her diet and then add items back in, while keeping close records of symptoms, that would be my advice. Best of luck and remember you have to be your (her) own advocate!

I have had IBS for a few years and I have tried everything. The main items that I found to be triggers are: dairy (lactose intolerance), saturated fats (meat, especially oils including olive oil, sugar and gluten. I tried Fodmap and it never worked. I am back to normal if I stay away from the above triggers!! Don’t forget to take a probiotic! 😊

I suffered from increasingly severe IBS for 5 years until I was diagnosed with Alpha-Gal Syndrome for a tick bite and then Histamine Intolerance. You can receive a tick bite and never know it. They don't have to attach and engorge and ticks submit a substance that anesthetizes the site so that you don't feel the bite. AGS is not a health issue that is typically suspected by Drs. However the testing is a simple blood test. Once diagnosed and after eliminating all mammal foods and as many by-products as possible all IBS symptoms stopped in two weeks. From the CDC: "The main diagnostic test for AGS is a blood test looking for immunoglobulin-E antibodies specific to alpha-gal (alpha-gal sIgE).
Tests for alpha-gal sIgE antibodies are available at several large commercial laboratories and may be available at certain academic institutions.
LOINC Code: 73837-7 Galactose-alpha-1,3-galactose (Alpha-Gal) IgE Ab [Units/volume] in Serum."

@palladio1500
I think it’s the first time I see Alpha-Gal Syndrome mentioned here.
My daughter has AGS- manifesting in beef allergy, including the smell of beef cooking.
Very frustrating.

Has anyone tried the product EMMA or any other supplement that has helped clear their gut and IBS? Thank you for replying. Charles aka brotherchuckles80