Past my expiry date

Posted by jdiakiw @jdiakiw, Dec 5, 2023

A Birthday Organ recital. Read or pass.

Thanks everyone! Best wishes from every continent, from every school I ever taught in, and students from nearly every class I ever taught . How life affirming! I reflect on my luck:

87 today!

Now that is ridiculous. Never expected that! Especially when the cardiac team at Sunnybrook said I would not live out 2020 without open heart surgery, which I would not survive because of all my other co-morbidities. I can’t walk 50 metres now without stopping to rest. After 2 minutes my blood oxygen falls to the low 80s.

I’ve told the story before of Dr Strum in California who found my case so intriguing that he adopted me medically and poured over my results and case reports meticulously, created an online private website containing all my medical results, case reports and links to medical articles he has discovered ( most in China) relevant to my many conditions. He has recommended drugs and supplements unheard of here.

Two heart measurements that predict imminent heart failure are, one, the descending aorta. Open heart is recommended when it widens to 52mm. Mine was rapidly widening till it stopped in its tracts at 48mm after Dr Strum’s treatment plan. The second measurement is the percentage of blood ejected from the left ventricle with each beat . I was getting readings of 27% and 36% ( LVEF). When I had my recent echocardiogram it was 51%. In the normal range! Thank you Dr. strum!

Dr Strum is an advocate of having fatty acids tested as routinely as testing for cholesterol, blood sugar etc. My results were way out of whack and I now take Vascepa. I’m in the optimum zone now. He sent me articles by Dr Gary Lapuschuck a heart researcher with over 500 peer-reviews articles on how the heart metabolizes glucose and fatty acids in a fixed ratio in a healthy heart and the ratio gets out of whack in a failing heart. I sent Dr L a list of all my meds and simple case report summaries. I preyed on his Ukrainian background by signing off with my doctorate title and Yaroslaw, hoping our common academic and cultural background would entice him to respond. He did. I asked him if I would be a candidate for a drug called vasperal and he wrote an encouraging reply and agreed with Dr Strum’s treatment plan. Vasperal rebalances my fatty acid/glucose ratio. Vasperal is not approved in Canada or the US. So I ordered it online from Turkey and when I was in Saudi Arabia I bought more over the counter at the big pharmacy chain there. They make Shoppers Drug Mart look like a poor cousin by comparison. ( Btw vasperel achieved some notoriety when it was discovered in the blood test of the young Russian woman skater in recent Olympics. She said it was her grandfathers, so I believed her) .
My diabetes is so controlled. my endocrinologist fired me. "I don’t need to see you anymore’ I was sent to the dialysis clinic to begin dialysis for my polycystic kidney disease and the nephrologist there said I won’t need it for a couple of years or more.

With my limited mobility I do feel my life ebbing away. On my trip to the Red Sea I realized my travel days are over it was a bit too much for me, as were airports. Getting around Jeddah was impossible without Uber. I’m still dreaming though, and found a solution — a foldup electric scooter. 25 km per charge and a top speed of 30km per hour. My family is not as enthusiastic as I am.

My doctor here commented on my failing body saying, "there sure is nothing wrong with your brain"

It’s true, at rest my brain crackles with new ideas and things to do. At ‘the home’ I’ve given a number of talks, conducted workshops , I edit the Residents Review, write profiles on Residents, research for my monthly Swan Lake Digest of mental health issues, and trying to develop programming for anxiety, depression, grief/loss, insomnia, and loneliness. Not getting anywhere here so I went to head office. Progress is slow but they have adopted Canada wide, my inventory of anxiety and depression for all new residents.

But my brain explodes constantly with crazy ideas totally unrelated to anything in my life. For example I wanted to work with the chef here on a new snack product and sell the recipe to President’s Choice.

Birthday wishes, with so many happy connections in my life are uplifting. Stay tuned for my 2024 birthday reflections. Your friendship has meant everything to me.

Interested in more discussions like this? Go to the Aging Well Support Group.

An expiry date is just an arbitrary day, picked out of the ether. No one says you have to play by the rules!
Ginger

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Wonderful commentary of your life and our slightly dysfunctional health care system! You’re a true inspiration….

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So you are 87 years old. From my point of view I say big deal. I am 89 years old. Way past my expiration date. It was two years ago on this date that I had a full hip replacement. And that is it. For my age I am relatively in pretty good shape. I am sincerely sorry for all the medical problems you are having. That really sucks. For me the worst thing that has happened in my life is the loss of my husband. We were together for 62 years and married for 59 years. Even with therapy I am having a hard time dealing with this. Nevertheless, as an experiment (or whatever you want to call it) I have booked a short Alaska cruise. I have to see what happens when I go somewhere alone. At my age, this may indeed be my last trip. Anyway much good luck to you to have more years and for the wonderful doctor you have.

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When I was 12-13, on the way home (yes, those were the days of walking home several kms alone), I used to drop in on a lady and help her do some chores, make her evening meal and do breakfast and snacks for the next day. She had advanced dementia, and was approaching 100, however her body was working like someone 1/4 her age. She was formerly a concert pianist, and she travelled the best ocean liners of her day and entertained many of the people that are beyond the everyday (her explanation).
She was always full of musical ideas, writing/composing, and experimenting musically every afternoon when I arrived - my first task was to sit across from her at her upright piano while she played her enormous Steinway grand (this thing took up the entire sitting room centre), in unison, because she loved playing in tandem. Age is only what you think of it, and make of it. I was privileged to know such a person that transported me across time with her music, her memories, and her passion, where I learnt so much more than anything I have ever learned in school or university.
My body is failing, and I’m a good 30 years younger than you - but that’s not the point. The point is what I do with my thoughts, feelings, and actions in this world. Contribution to betterment, which moves the great wheels of humanity forward.
Similar to you, I am an advocate for health and mental wellness, volunteering for multiple organisations to change things for the better at a national and state level, and even with cognitive decline, kidney/lung/heart/bowel disease, and significant neuropathy, I have just been accepted to start a grad dip next year - still in the health profession. No point in sitting at home without strong purpose, not doing something worthwhile… before that day come when I can’t (no matter if I want to or not).
It’s interesting you’ve invented recipes; I do the same, and distribute the results in my community and mail to friends (I make a very nice protein bar that is safe for inflammatory bowel disease, for instance). It’s interesting that you’re looking into ways to measure emotional health and wellbeing; I actively advocate for better methods of assessment, intervention, maintenance, and recovery service delivery, by changing research at universities, and policy in govt.
I actively support individuals experiencing emotional crisis.
Even with a brain injury and ongoing cognitive decline, keeping active from behind my desk is very important to me. Contributing is important. Age, well, that’s just a number.

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@thisismarilynb

So you are 87 years old. From my point of view I say big deal. I am 89 years old. Way past my expiration date. It was two years ago on this date that I had a full hip replacement. And that is it. For my age I am relatively in pretty good shape. I am sincerely sorry for all the medical problems you are having. That really sucks. For me the worst thing that has happened in my life is the loss of my husband. We were together for 62 years and married for 59 years. Even with therapy I am having a hard time dealing with this. Nevertheless, as an experiment (or whatever you want to call it) I have booked a short Alaska cruise. I have to see what happens when I go somewhere alone. At my age, this may indeed be my last trip. Anyway much good luck to you to have more years and for the wonderful doctor you have.

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I hope you get to really enjoy your trip away, and continue to heal after losing the person whom you spent so much of your life connected to 🌺

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@mguspixi25

I hope you get to really enjoy your trip away, and continue to heal after losing the person whom you spent so much of your life connected to 🌺

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Thank you very much.

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What an interesting post. Thanks so much for taking the time to do this. Well done!

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So enjoyed reading this. My mother is 98 and still going strong! Keep doing what you are doing, I wish you the very best!

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