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@loribmt

Hello @csanjuan. Your husband gets an extra hug for telling you about Connect! ☺️ Welcome to the group. It’s always helpful to find you’re not alone with a diagnosis and have other people to talk to who are going through the same medical issues.
Looks like you have double the ‘fun’ with having both ET and PV. Both are treated similarly with HU so it’s good news to see your numbers are back within normal ranges and your rate of needed a phlebotomy has slowed down!

Having gone through a health issue myself, I know how this can tap into your daily life with a level of uncertainty. We’re never quite the same when we feel like our body let us down. It’s important to not dwell on ‘what ifs’, however. That thought process is an energy sapper and stress producer. Staying mentally positive is a key to survival. From what I’m reading, I think you’re handling this well with making sure you get daily exercise and grabbing a nap when needed. There’s no shame in napping because it’s important to listen to your body. If she wants to nap, then so be it! ☺️

You’re having blood work next week so best wishes for only good news there! Let me know what you find out, ok?

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Replies to "Hello @csanjuan. Your husband gets an extra hug for telling you about Connect! ☺️ Welcome to..."

Thank you for your encouraging reply. I will keep you updated with my results and appointment next week.