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Jak 2 mutations

Blood Cancers & Disorders | Last Active: Dec 6, 2023 | Replies (13)
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@jewelfaux

Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite days. I was diagnosed with ET JAK2 a year ago. I've only had blood work done, never a bone marrow test. Should a bone marrow test have been done? Should I look for a different hematologist?

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Replies to "Lori, I'm 75 take 325mg aspirin and 1500mg HU every other day and 1000mg on opposite..."
Lori, Volunteer Mentor | @loribmt | Dec 6, 2023

Hi @jewelfaux. The JAK2 mutation can be discovered/diagnosed with blood work. It isn’t necessary to have a bone marrow biopsy for confirmation. But because the mutation is associated with bone marrow disorders, sometimes a doctor will order further testing if they have questions about a patient’s condition.

Reading through some of your replies with other members, you’re concerned about the higher rate of HU you’re taking. If you’re not ‘feeling comfy’ with your current hematologists, it’s always your right to have a second opinion.
Are you seeing positive results with the reduction of platelets with the level of HU you’re taking? How about side effects?

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mdterp76 | @mdterp76 | Dec 6, 2023

Wow! You must have a strong stomach to be able to take 325mg of aspirin. I can only take one baby aspirin. I was also diagnosed with Jak2 through a blood test. I take 500 mg of HU, 2x week, daily iron and daily baby aspirin. Most of my blood numbers are back to normal, save for platelets at 560. They had been over 700. I'm 69 and was diagnosed in Jan. 2023 as ET with Jak2.
Karla

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