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Essential Thrombocytosis: What amount of hydroxy do you take?

Blood Cancers & Disorders | Last Active: Apr 14 10:05pm | Replies (77)
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@claire39

Hello Magnolia1949……I too have ET and MPN diagnosed five years ago. I started with 500mg daily and a few months ago changed to five days a week because of anemia and fatigue. Seems to be working okay. I still have fatigue but I think that it is here to stay. I take my meds at bedtime and it helps with the nausea. If have blood work every month and right now my red count is low. I think it is a balancing act with different results every month.
I too am grateful for this site. I do not post often but I check it every day. Good luck with everything…….Claire

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Replies to "Hello Magnolia1949……I too have ET and MPN diagnosed five years ago. I started with 500mg daily..."
kapow | @kapow | Dec 6, 2023

I’m like you Claire. I don’t post often but I follow closely every day. I appreciate what everyone shares. Thank you all! 🥰

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bluegrasspv2018 | @bluegrasspv2018 | Dec 7, 2023

Hello, I do not have ET but I do have PV which is the ugly sister of ET. PV is one of the MPNs. I became a member of the PV club in 2018. I originally took 500 mg of Hydroxyurea "Hydra" that is what my doctor calls it twice a day. My platelets are under control so now I am taking 500 mg only once a day in the morning. I have not noticed any difference. I have super fatigue around 7 pm every day. I eat dinner then hibernate like a bear all night. I plan all my brain-intensive activities in the morning. I go to a gymnasium 3 times a week and feel much better because of it. I volunteer a lot at my military veteran's clubs and stay active. Just turning 65 and plan to be around for a long time. I love to watch the bluegrass grow. Good luck to you from the heartland of America, Kentucky USA.

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