Does anyone have daily persistent headache all day, every day?

Posted by mikaylar @mikaylar, Nov 16, 2023

Docs cannot figure it out. Dizziness too.

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@mikaylar

I tried Botox 2x but it did nothing

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May I ask where you live? My daughter see’s Dr Silverstein out of Jefferson hosp in Philadelphia. She is on a migraine cocktail 7 different Med’s. It’s tough don’t give up.

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@mikaylar

I tried Botox 2x but it did nothing

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My headaches continue also bc my neck is out of alignment a little and I have disc that has leaked some.

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Hi,
Since I had an unruptured aneurysm which is now clipped, I have had occipital and Trigeminal migraines almost daily. Plus a year later I had to have emergency fusions on 3,4,5 cervical which doesn’t help. They became worse with a lot of ringing. They are extremely scary at times in nature but I have learned their patterns. I am definitely plagued by something after all of this. And most everything I have tried does not work. Even Botox to nerve blocks. I hope at some point someone can help me.

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@pamela77d

May I ask where you live? My daughter see’s Dr Silverstein out of Jefferson hosp in Philadelphia. She is on a migraine cocktail 7 different Med’s. It’s tough don’t give up.

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I went to Jeff for years and then switched to Penn. It's my daily headache, unlike a migraine. The only symptom of migraine I have is aura. My headache is every day/all day.

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@irr4et

My headaches continue also bc my neck is out of alignment a little and I have disc that has leaked some.

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Mine is my neck too. Someone has to help us.

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@mikaylar

I have had so many doctors I have lost count.

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I had this problem after a tick bite
Check for Lyme disease

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@chichi12

I had this problem after a tick bite
Check for Lyme disease

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I did

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Yes, I have headaches all day everyday for the past 16 years. I'm so sorry you are going through this too.

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@pamela77d

May I ask where you live? My daughter see’s Dr Silverstein out of Jefferson hosp in Philadelphia. She is on a migraine cocktail 7 different Med’s. It’s tough don’t give up.

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I have done the Jefferson route for years with Dr. Young and Dr. Parikh, then moved on to Penn.

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@irr4et
Hi all,
I have been dealing with (not well) with headaches, migraines, and trigeminal neuralgia since May 2004. I had a crown put on. I have had more dental hell since, thus more pain. I now have a neurologist that does not think dental work can cause the headaches. Ha! I am looking for a new one. As my headaches are not caused by a medical problem per se, I have actively searched for answers like many of you.
I cannot say enough about cranial sacral therapy (by a person schooled to do that, absolutely amazing (she found my cancer, did not know what it was and told me where to have them look). I also a few years later (stage 4 nhl battle and obviously won) have been doing PT which has been amazing. My posture which had caved to the pain is almost back to normal, my non-infusion day headaches, are there, but just hum in the background. I have been doing strengthening exercises for my neck, to help also. I do everything I can so that at least the health issues I have and can help myself, regardless if I want to, especially on a wet winter day, my head...

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