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Transplant: BK Virus

Transplants | Last Active: Jan 14 5:21am | Replies (117)

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@colleenyoung

Hi @lmcarmichael, great to welcome another heart transplant recipient. I'd also like to introduce you to @danab @scottij @estrada53 and other fellow transplant recipients.

It does sound like you've been "walloped" by meds. (Great medical term, by the way 🙂 )
Bladder irrigation that flushes the bladder with sterile liquid is a medical procedure generally used to prevent or remove blood clots after surgery in the urinary system. Are you investigating bladder irrigation because you are concerned about blood clots? Have medications been reduced to help improve the eGRF?

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Replies to "Hi @lmcarmichael, great to welcome another heart transplant recipient. I'd also like to introduce you to..."

Hi @colleenyoung, nice to meet you. I'm on a blood thinner due to previous pe's. Honestly, my bladder is just so irritated I've been thinking that it would feel good even if painful. Just to clean out the yucky tissue. This is the second time around. I had CMV and BK for a year. The CMV went away and the BK went down then the BK went up signaficantly about 6 months ago (at least the pain has, wasn't tested until recently).
Infectious disease worked with my team and reduced my cellcept to help get rid of the cmv. They haven't made any changes to improve my eGRF due to fear of rejection for my heart. So complicated.