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Deep aching migrating pain in lowr legs/arms?
Polymyalgia Rheumatica (PMR) | Last Active: Dec 6, 2023 | Replies (7)Comment receiving replies
Good morning ! So, @tjmjsjwj (your username is a high Scrabble score ! ) replied to a conversation that is 2months old. I'm curious @kberlyhouse -can you tell us what happened to you ? and the ankylosing spondylitis testing? Do you have a history of spinal issues ?
I was Dx wth PMR in April. 30mg Prednisone tapered to 7 mg now. I have just had MRI of both legs for deep searing pain in my thigh that has persisted for last 5 months and PT not helping. sitting in car and driving specifically makes it worse. The MRI shows inflammation at top of right femur.
"Finally, after 2 years of bloodwork, imaging tests, MULTIPLE drugs trials and alternative treatments to find the answer, I was finally diagnosed with PMR" <
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Hi @nyxygirl! Thanks for checking back. I do not have ank-s. Test came back negative. I was referred out by my Rheumy (who I told needed to read some forums to understand PMR better!) to a Georgetown U hospital Rheum. He was awesome. He confirmed that I do have PMR and also Long COVID. PT also did not help but made my condition worse. I’ve tried Kevzara- no relief as I tapered below 4mg all symptoms increased. My new Rheumy says I’m doing all I can. Meaning that there is no other answer pharmaceuticals other than Pred. Soooo I’m doing sauna 4-5x a week and will start alternating red light therapy soon to help reset my immune system. This is a case of immune system gone haywire so I have to address it from that perspective. Still on 5mg pred daily as that level allows me to exercise and function. Still have the roving pain in legs and arms. That has been helped greatly by eating a vegan diet (I miss meat and eggs!!), but I do eat some fish. Hope that helps!