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A Summary of My Multiple Myeloma

Blood Cancers & Disorders | Last Active: May 6 6:22pm | Replies (36)

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@jiminmorris

We are just coming up on Day 100 and another visit to Mayo Clinic Rochester next week. My wife was MRD negative going into the transplant, so we fully expect to be MRD negative afterward. We used Revlimid through six months (eight three week rounds) of chemo, and had only minor side effects. I have read in the literature that some oncologists now consider the possibility of eliminating maintenance with Revlimid if there have been two MRD negative results several months apart. We will see what the doctors recommend next week.

The very good news about the BMT phase is that we have yet to need even a single day of inpatient care, having had no noticeable infections, and no visits to the ED at the local hospital. During the preceding months of chemo we visited the hospital with infections three times. We are very thankful for the care from the transplant team, Eisenberg 9-4 and accommodations at the Gift of Life house that enabled this outcome. We live in a rural area, and have family members who have understood the importance of keeping their distance during the first 100 days. And, of course, we acknowledge God's healing grace at work.

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Replies to "We are just coming up on Day 100 and another visit to Mayo Clinic Rochester next..."

I'm so happy for you. And of course we can't forget that without God, none of this would be possible. I'll be meeting with my oncologist on Friday to discuss the same thing in regards to discontinuing the revlimid maintenance. Keep safe and praying that things will only get better moving forward.