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Iron deficiency anemia without an apparent cause
Blood Cancers & Disorders | Last Active: Dec 11, 2023 | Replies (55)Comment receiving replies
I was diagnosed with CCUS in October. I’m 66 years old and have always had ITP or low blood platelets. As I was checking for my numbers for my platelets I saw that that my white blood count was extemely low and that’s how all this started - that was in August. I went through all the testing, including a bone marrow biopsy, which they did find small amounts of cells that were abnormal. I was at Mayo in October and won’t see my doctor again until end of January. Right now they want to monitor my blood draws, check with other doctors and try to see what, if anything, they’re going to do. As my doctor said they want to be very sure exactly what is wrong because the remedies for most of this are quite toxic and they need to be sure of what needs to be done. It’s hard to wait because the numbers are so low I need to do quite a bit of isolating, anxious to see what we’re going to do.
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I am in much the same situation. I have anemia to the point of having iron infusions, and at one point a transfusion of blood. I was diagnosed in 2020 as smoldering but my oncologist and specialist are not sure this anemis is due to myeloma. So I wait and watch. Recently I was in the hospital and one of the tests they did was a bone marrow biopsy, i had one at diagnosis but none since then. . In the past I have been sitting at 20% involvement. This test showed 30 to 50%. So with those numbers am I on the low end and still smoldering or close to that magic number of 60%? Right now they want to see if my hematocrit and hemoglobin continue to fall. If so I will start treatment. They haven't done any treatment even though I am high risk. Their statement was that if they pull the plug and start treatment I will be put under stress of the drugs and if the anemia is not due to myeloma it won't suddenly go away. So they would treat but I would continue being anemic. Meanwhile wait and watch and get nervous when labs are drawn.