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Transplants | Last Active: Dec 8, 2023 | Replies (14)
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Mycophenolate gave me terrible digestive issues, I had to come off it and spent some time in hospital because of it. I lost 4stone in weight in a very short period of time. I now take the adagraff (and prednisone as a replacement to the Mycophenolate)
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Good morning @janni1 😊
I am so sorry to hear about your GI experience with MMF. Unfortunately, I think GI issues is a common adverse reaction, but landing in the hospital sounds awful.
How long have you been taking Mycophenolate when the problems started up?
I am a three year post kidney transplant and I am starting to have GI issues now.
My main complaint is acid reflux and a gurgling sour stomach. I have started to take Protonix to see if that helps.
If not, I think they will change me to Myfortic. I see your doctors decided not to try Myfortic and went to Adagraff and Prednisone.
This is the first time I have heard of Adagraff. Are things going better now for you? Has your stomach recovered and your labs are good?
Thank you so much for jumping into this discussion @janni1 ....and it's very nice to meet you!