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CMV positive what now?

Transplants | Last Active: Dec 8, 2023 | Replies (14)

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@myringo

No I’m not a mayo patient. I currently take 500 mg of microphenolate 2 times a day and 9 mg Tacrolimus 2 times a day. I am hoping to hear from my coordinator tomorrow. It takes my transplant center a few days longer to get my lab results. I was getting cmv checked every Thursday but I’m going to see if lab will test me on Mondays instead so my center will get the results sooner and not on a weekend. I was a low positive last time for cmv but it was always undetected before. It’s good to know there’s help for it. I’ve been having headache and nausea today so we’ll see what my Dr says tomorrow.

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Replies to "No I’m not a mayo patient. I currently take 500 mg of microphenolate 2 times a..."

@myringo 😊
Yes, I always have my labs drawn on Mondays so I have the results back (usually) by Thursday. It's definitely not fun to get lab results back on the weekend.
After you speak with your transplant coordinator, please keep us posted. I assume you will be scheduled to have a brief phone call or video call tomorrow with one of the transplant nephrologists to discuss the best plan of action.

Mycophenolate gave me terrible digestive issues, I had to come off it and spent some time in hospital because of it. I lost 4stone in weight in a very short period of time. I now take the adagraff (and prednisone as a replacement to the Mycophenolate)