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Blood Cancers & Disorders | Last Active: 3 days ago | Replies (928)
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@dazlin I drive over 2 hours each way to my specialist team, and can certainly relate!
Fatigue can have several contributing factors, including the MGUS, and other health concerns all jumbled together. I am on daily dialysis, plus have fibromyalgia,so my myeloma seems to sleeve right into the fatigue factor.
If one test is stating positive for MGUS, you may want to inquire if they truly want you to wait a year?
Ginger
Replies to "@dazlin I drive over 2 hours each way to my specialist team, and can certainly relate!..."
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@gingerw , sorry your going through alot!! Good hear your keeping up with everything and travels. My best to you!!
I used to go every 6 months, then I had a very caring, thorough dr that moved me to 4 months. He is no longer there. Now since last year I have a new dr, that said once a yr is ok, although I didn't get to see him, as I mentioned. I think the mgus is so slight, and with no progression they feel it's ok. It really depends on who you get🤷♀️.
I'm really not sure if I want to stir up anything right now, especially seeing my labs are mostly in normal range. I wish I could somehow, just let someone know up there, about my last visit, and I will not be mislead next time about seeing my Dr. Kinda disappointed I didn't get answers to my burning aching feet....I told her I had to get a stool for the kitchen so I can continue cooking, etc and get off my feet.
Her notes are off too...she doesn't mention that, and says mild fatigue...WHAT!!