1. < Neuropathy

Supplements

Posted by jerryw @jerryw, Nov 25, 2023

Hello everyone. Has anyone here ever tried any of these supplements like, " Nuphoria ", " Nerve Renew", or R- Alpha-Lipoic-Acid". Would like to see if someone has actual experience with them. Thank you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

jerryw | @jerryw | Dec 2, 2023
In reply to @casd57 "I really can't put a date on when I actually started the above supplements because I..." + (show)
@casd57

I really can't put a date on when I actually started the above supplements because I have tried a bunch of supplements since Feb but ALA was always there and then I learned the difference between ALA and RALA and NR-ALA and I changed to it...
But I can tell you that I went to Disney World-Epcot-Universal this month and we walked 8-10 miles a day and I only needed short breaks... and this was before I was started Pregabalin last week.
Even before the trip, I had been noticing that I could stand longer and my feet were recovering faster(short breaks).. this has been going on since July or so.. So I know my Nerves are getting better...
Like I said my triggers are Chocolate....and I love my sweets after dinner but I have to avoid it and especially Chocolate..:(

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Thanks casd57. Good for you. Glad to hear your progress. I am one who believes these Small Fiber Nerves can heal also. Our bodies are amazing what they can do. I am going to be trying supplements myself. I have been on a Proton Pump Inhibitor for a few years and Ambien for Insomnia. They both can do damage to the nervous system. I am tapering off of them and will be going with natural products. I have not even had heartburn for over a year. Been eating healthy and exercise. One question? Have you ever had burning sensation in your feet? Thanks again. Jerry

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1 reply
julbpat | @julbpat | Dec 2, 2023
In reply to @jerryw "Can you qualify for Dissability with Neuropathy?" + (show)
@jerryw

Can you qualify for Dissability with Neuropathy?

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Yes. I did. It’s not really a financial lifesaver, but allowed me to start Medicare early, which has been helpful.

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1 reply
julbpat | @julbpat | Dec 2, 2023
In reply to @jerryw "Thank you julbpat. Hope you are well. Looking back at some of my post, I hope..." + (show)
@jerryw

Thank you julbpat. Hope you are well. Looking back at some of my post, I hope I have not said anything to sound like a knuckle head. Just still looking for hope.

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No, I just hear a distrust of pharmaceuticals and the companies that sell them. Because I’m a nurse, I am comfortable with taking medications as needed. Every medication starts with a scientist or researcher in a lab. Some may be there because they’ve seen a family member suffer. Others are just super smart and curious about finding solutions. I doubt that they consider themselves part of Big Pharma. They are just creating medications to help people. I’m just glad they are there!
Let’s see, I’ve been in pain for at least 2,848 consecutive days. It’s getting progressively worse. The future is grim. Bring on the meds!

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casd57 | @casd57 | Dec 2, 2023
In reply to @jerryw "Thanks casd57. Good for you. Glad to hear your progress. I am one who believes these..." + (show)
@jerryw

Thanks casd57. Good for you. Glad to hear your progress. I am one who believes these Small Fiber Nerves can heal also. Our bodies are amazing what they can do. I am going to be trying supplements myself. I have been on a Proton Pump Inhibitor for a few years and Ambien for Insomnia. They both can do damage to the nervous system. I am tapering off of them and will be going with natural products. I have not even had heartburn for over a year. Been eating healthy and exercise. One question? Have you ever had burning sensation in your feet? Thanks again. Jerry

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Yes, Burning-pin and needles etc.., are all part of it

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jerryw | @jerryw | Dec 2, 2023
In reply to @julbpat "Yes. I did. It’s not really a financial lifesaver, but allowed me to start Medicare early,..." + (show)
@julbpat

Yes. I did. It’s not really a financial lifesaver, but allowed me to start Medicare early, which has been helpful.

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Hello julbpat. Thanks for replies. Do you or John know if there is a forum on here with
neuropathy success stories? Thanks

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Dec 2, 2023
In reply to @jerryw "Hello julbpat. Thanks for replies. Do you or John know if there is a forum on..." + (show)
@jerryw

Hello julbpat. Thanks for replies. Do you or John know if there is a forum on here with
neuropathy success stories? Thanks

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Hi Jerry, Lots of different folks have shared what has helped them in many different discussions. Although there really is no cure, there are lots of different treatments that have helped or provide relief for the symptoms. Here's the search results when searching for neuropathy success - https://connect.mayoclinic.org/search/discussions/?search=neuropathy+success

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1 reply
rllh5403 | @rllh5403 | Dec 3, 2023
In reply to @jakedduck1 "@jerryw I don't know what specific type of neuropathy I have, only that it's polyneuropathy. My..." + (show)
@jakedduck1

@jerryw
I don't know what specific type of neuropathy I have, only that it's polyneuropathy. My tests showed mild neuropathy. That was many years ago.
If they say “no neuropathy” what if any diagnosis did they give you?
Take care,
Jake

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I highly recommend Cleveland Clinic. I was diagnosed with SFN at the beginning of COVID in 2020. My Dr. at CC was excellent; she called me since I couldn't keep my appt bc of COVID and she diagnosed me over the phone, however, I did go the the Clinic for tests to determine for sure it was SFN. I am having a terrible time finding a good neurologist so basically I have been untreated for the last 3 years. I did have one Dr. that prescribed gabapentin. I have an appt this month to see a new Dr. Btw, the neurologist that diagnosed me was Julia Bucklan at Cleveland Clinic. She is wonderful When she called me; she stayed on the phone with me for an hour asking many questions to determine what was wrong with me.

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1 reply
jerryw | @jerryw | Dec 3, 2023
In reply to @rllh5403 "I highly recommend Cleveland Clinic. I was diagnosed with SFN at the beginning of COVID in..." + (show)
@rllh5403

I highly recommend Cleveland Clinic. I was diagnosed with SFN at the beginning of COVID in 2020. My Dr. at CC was excellent; she called me since I couldn't keep my appt bc of COVID and she diagnosed me over the phone, however, I did go the the Clinic for tests to determine for sure it was SFN. I am having a terrible time finding a good neurologist so basically I have been untreated for the last 3 years. I did have one Dr. that prescribed gabapentin. I have an appt this month to see a new Dr. Btw, the neurologist that diagnosed me was Julia Bucklan at Cleveland Clinic. She is wonderful When she called me; she stayed on the phone with me for an hour asking many questions to determine what was wrong with me.

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Thanks for reply. 3 years? Gabapentin doesn't help mine. Do you get burning in feet and ankles, shins,calves?

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rllh5403 | @rllh5403 | Dec 3, 2023

No burning, just pain, but not all the time, which I am thankful for.

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jerryw | @jerryw | Dec 3, 2023

Thanks for reply. Good for you. Awesome.

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