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@gingerw , thank you for your helpful reply. Last night I got 2 more results, one saying positive for mgus, flagged it. I'm supposed to go in 1 yr, I'll definitely ask if that will include an examination and let them know I haven't had one. Otherwise, ill do the labs and leave. I've never complained to them for the body/foot aches, but have every time about fatigue that hits me hard. They have
no explanation. I think right now I'm feeling very overwhelmed, I'm sick, probably a flu I caught from my grandson, hes 4 yrs.
I do mammograms there, dermatology, and I see an audiologist also...so the trips take a toll on me. 96 miles one way, and I always get my house and cooking situated the day before. I just like being organized. I see primary dr on the 12th, maybe I'll complain 😏. Will definitely ask him about the painful bump on my foot.
I appreciate your reply...maybe I need a push.
Replies to "@gingerw , thank you for your helpful reply. Last night I got 2 more results, one..."
@dazlin
I definitely support your asking questions. I was a medical social worker for 15 years and assisted patients in conferences with their medical teams. I always encouraged patients to write down their questions and either ask for a phone or in-person conference during which to ask all these questions until they understand the diagnosis and course of treatment for the disease and all symptoms.
Doctors can be intimidating but you are important and need information. Don’t put it off.
For me, I get aches and pain which is probably age-related, but I still tell my doc about it. I have no idea if there is any significance unless I ask and they examine. So far, so good. I feel fortunate that my numbers are fairly stable.
Wishing you the best outcome. I hope that one of the questions on your list is “why are we waiting a year for an exam?” Even if that long wait is medically defensible, if it makes you anxious, they should bump it up.
Patty
@dazlin, were you able to discuss your foot pain and fatigue with your Primary? I don't know what tests you had to confirm MGUS, but maybe they should delve a little deeper. For instance, you could get nerve testing (EMG/NCS) to determine whether your symptoms are due to neuropathy, and if so, what sort of damage is occurring and to which nerves. That can make a difference for diagnosing the plasma disorder and for treatment.
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@dazlin I drive over 2 hours each way to my specialist team, and can certainly relate!
Fatigue can have several contributing factors, including the MGUS, and other health concerns all jumbled together. I am on daily dialysis, plus have fibromyalgia,so my myeloma seems to sleeve right into the fatigue factor.
If one test is stating positive for MGUS, you may want to inquire if they truly want you to wait a year?
Ginger