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Jak 2 mutations

Blood Cancers & Disorders | Last Active: Dec 6, 2023 | Replies (13)

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@kwmotley

They found the marker in blood test. More testing this week. Bone marrow Testing

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Replies to "They found the marker in blood test. More testing this week. Bone marrow Testing"

With me they found high platelets and had me see a hematologist who tested for jak2 which I have. My diagnosis is essential thrombosis. Had the bone marrow test was inconclusive. Try not to worry easily said. Many people have jak2 and they don’t know it. Did they say what they think u have. If it’s ET it’s not a death sentence they will just check ur blood every 3-4 months.
Wishing u well
Debbie

Me, too. A routine blood test found high platelets, which led to a referral to a hematologist. He tested variants and found JAK2. Yes, it’s scary till you look at statistics. Many people have lived with this for decades. My heme doc said it’s not necessarily a precursor to a cancer. It’s more like diabetes and usually controllable.
Do you have a treatment plan? I’m taking an 81mg baby aspirin daily. So far, so good.
Best wishes,
Sherry
Btw: Life goes on! I’m sailing the Rhine River on a Christmas Markets cruise as I write this!