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Essential Thrombocytosis: What amount of hydroxy do you take?

Blood Cancers & Disorders | Last Active: Apr 14 10:05pm | Replies (77)
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@leonard01

Oh Debbie I forgot to mention yes, I have tested positive for
jAK2 As well as two other genetic mutations, which place me in what is called in hemoncon language as Intermediate risk for progression.
This is a course worrisome.
But I am staying busy, active, and positive about keeping this mysterious invasion of my body at large!LOL!

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dealwithit | @dealwithit | Dec 2, 2023

Hi Leonard
I also tested for a mutation it’s a monoclonal protein spike. So with that and jak2 prone to leukemia but statistically my hematologist said I’m more likely to have a heart attack from my cardiac artery disease. Lol

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dealwithit | @dealwithit | Dec 2, 2023

Oh and if u feel worse with that dosage u tell him u want it lowered to where ur feeling more comfortable. I’m not a doctor but 550 is not that high and by him giving u the dosage he suggests it’s not going to cure u. Sometimes they don’t think about how the patient feels. U control ur body not him.

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