Hi Debbie
Thanks for your inquiry and your input. My diagnosis began a year ago when my platelets went from 450 to 1200. Then the bloodwork flagged the problem of thrombocytosis .
I began the hydroxy in February 2023 and was taking 500 mg a day. At first my platelets went down got into the 400 range but then the last two blood tests showed platelet counts of over 550. My newly assigned haematologist versus oncologist has increased my dosage by advising me to take 2×500 mg twice a week and one time 500 mg daily. He wants my platelets to be in the 400s. He said that he feels the 600 count that seems to be a lot of the standard here in Ontario Canada is a bit high and he’s targeting to get me down a bit. Thank you very much for your observation of the connection between my chemo medication and my fatigue. It’s very tough when we used to being active isn’t it?
I find this amazing, sometimes causing me to pay too much attention to my blood disease, but most often giving me insights and a sense of camaraderie, knowing that other fellow MPNrs share similar symptoms and worries. Always appreciate any input, and certainly willing to provide any tips wherever I can to my fellow MPN team members.