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Essential Thrombocytosis: What amount of hydroxy do you take?
Blood Cancers & Disorders | Last Active: Apr 14 10:05pm | Replies (77)Comment receiving replies
Being fatigued is the hydroxy it is a chemo medication which helps your bone marrow to not make so many platelets. You never said what ur platelet count was that ur Dr. increased the med. from what to what, also did he tell you if u have the jak2 gene? I have had this condition since 2005. I was on hydroxy until last year. My platelets are now 478 and why I don’t know but my dr. Is giving me a break no hydroxy for a year. Also, I have the jak2.
Feel better
Debbie v
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Hi Debbie
Thanks for your inquiry and your input. My diagnosis began a year ago when my platelets went from 450 to 1200. Then the bloodwork flagged the problem of thrombocytosis .
I began the hydroxy in February 2023 and was taking 500 mg a day. At first my platelets went down got into the 400 range but then the last two blood tests showed platelet counts of over 550. My newly assigned haematologist versus oncologist has increased my dosage by advising me to take 2×500 mg twice a week and one time 500 mg daily. He wants my platelets to be in the 400s. He said that he feels the 600 count that seems to be a lot of the standard here in Ontario Canada is a bit high and he’s targeting to get me down a bit. Thank you very much for your observation of the connection between my chemo medication and my fatigue. It’s very tough when we used to being active isn’t it?
I find this amazing, sometimes causing me to pay too much attention to my blood disease, but most often giving me insights and a sense of camaraderie, knowing that other fellow MPNrs share similar symptoms and worries. Always appreciate any input, and certainly willing to provide any tips wherever I can to my fellow MPN team members.