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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@gingerw

@dazlin Stable numbers are a good thing! An early holiday gift for you, healthwise!

Trends in blood tests are the best way of monitoring our chronic condition, which MGUS is. As you have read here, we often go many years with no advancement of the disease process to smoldering myeloma. Many of us have quarterly tests that eventually stretch out to every six months. You certainly can ask your team at Mayo why there was no physical exam, and listen to their answer. My hematologist oncologist will check my lungs and heart each time, plus lymph nodes, pulse, and legs for swelling.

Ask your primary about the fatigue and foot/leg burning. He may want to have some baseline tests done, or look at what Mayo did. Has Mayo addressed these with you in the past?
Ginger

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Replies to "@dazlin Stable numbers are a good thing! An early holiday gift for you, healthwise! Trends in..."

@gingerw , thank you for your helpful reply. Last night I got 2 more results, one saying positive for mgus, flagged it. I'm supposed to go in 1 yr, I'll definitely ask if that will include an examination and let them know I haven't had one. Otherwise, ill do the labs and leave. I've never complained to them for the body/foot aches, but have every time about fatigue that hits me hard. They have
no explanation. I think right now I'm feeling very overwhelmed, I'm sick, probably a flu I caught from my grandson, hes 4 yrs.
I do mammograms there, dermatology, and I see an audiologist also...so the trips take a toll on me. 96 miles one way, and I always get my house and cooking situated the day before. I just like being organized. I see primary dr on the 12th, maybe I'll complain 😏. Will definitely ask him about the painful bump on my foot.
I appreciate your reply...maybe I need a push.