Hey there, Sue Ellen,

Your situation sounds crummy- my sympathy! Mine might be a bit similar to yours.

I have an autoimmune disease/s, too.
I get tingling in my tongue, lips and face (intermittent, bilateral paresthesia?).
Dentist, primary care doctor, 2 Ear-nose-throat doctors and neurologist with 2 brain MRIs -- conclusion is that there is inflammation somewhere inside my skull that is causing it. My rheumatologist thinks they are probably correct. So far, for me it's just an annoyance-- depressing but just annoying. I wonder now if all the doctors avoided saying "my brain is inflamed" so I wouldn't get upset.

I'm sorry that yours has thrown off your gait, etc. (Must really stink for you. I'm sorry I can't think of a better way to say that.) I can see why you might feel apathetic now. I find this Mayo site helpful. It helps me try to think if I can help other people here AND the "How about a laugh" section and the "Inspiring Quotes" section both cheer me up.

Do you talk with a therapist? I do and she is really helpful. Dealing with chronic illness is a burden and she has helped me a lot. Maybe you could give counseling a try?

Good luck to us 🙂