Yes my local radiation Oncologist referred me back to Mayo last week as PET scan incorrect ! Have dx code C40.22 cancer L fibula on 8/2022 2nd opinion MRI by local orthopedic referred by oncologist after 2020 PET scan showed 3.6 suv ! Prior to that marrow bone showed CD138 showed rare positive plasma cells?? Then bone biopsy showed multiple C+ cells with 20% lambda kappa suggesting B cell lymphoma but no flow cytometry done??But why 2 years and the long wait as my qol is null as I am barely able to care for self and do not know how many more days, months years of testing I can tolerate as my health has failed dramatically and I if Mets all I want is a confirmed diagnosis and go back on hospice as I foolishly went off for chemo or radiation but PET wrong ! as I need a fresh diagnosis PET scan and probably flow cytometry to confirm ! I hope Mayo can do as much as I need in couple visits ! I also sent all my imaging to the person I spoke to and hope she got them!
Do I wait for Mayo Oncology to call after they review my records??
Thanks for your reply