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DiscussionLarge granular lymphocytic leukemia (LGL) questions
Blood Cancers & Disorders | Last Active: Dec 1 9:46am | Replies (23)Comment receiving replies
Replies to "Wanted to say after reading the side effects of this infusion I sure don't want it,..."
Welcome to Connect @linepa2002. Oh golly, I know exactly the feelings you’re having when facing a rapid change in your health and being presented with a treatment option that comes with a black box warning. Been there, done that…bought the shirt. 😊
I’m on the road right now for two days and can’t use my computer to get you the information about your LGL diagnosis. Maybe other members will pop into the discussion. However, I can answer your question about blood work. Yes, blood numbers can change rapidly. So your hematologist is wanting to act quickly to help stop a progression with Rituxan (Rituximab) infusions. Believe me, I wasn’t keen on having them either after reading the info.
The infusions were like a wonder drug. The only reaction I had was during the first infusion. I was told it’s very common. You won’t be alone, the nurses are right there with Benadryl or steroid that is put in the IV at the same time. There were no after effects…just restoration to good health.
The first infusion could take a couple hours as it’s given very slowly. Take a book, iPad, snacks along. Though most infusion centers have snacks, water and juice. You’ll be able to get up and walk around and visit during the infusion too…the IV carts are mobile.
Do you have a friend or relative who could keep you company for a few hours?