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Essential Thrombocythemia (ET): foods, diet, nutrition?

Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)
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@judyar

Hi Eileen, thank you so much for your comment. It was very helpful. I just wish there was something natural I could do to get my blood plate let down instead of taking Hydroxyurea. You haven’t had any other side effects from the medication?I hope you continue to do well. Thanks again for your comment.

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Replies to "Hi Eileen, thank you so much for your comment. It was very helpful. I just wish..."
eileen11108 | @eileen11108 | Dec 1, 2023

@judyar

My platelets were 735 at my first visit to hematologist. They currently are 564 and my hematologist would like to get me below 400.

I was not hesitant about taking 500 Hydroxyurea. In the beginning I sometimes had a little lightheaded feeling, daily headaches, and one first ever vertigo attack. I was switched to every other day, brief stop, then Monday/Wednesday/Friday. I am currently taking 500 mg four days a week. I do not get the daily headaches now.

I do not even touch the capsule. I slide it to another small lid, swish water around my mouth, and swallow the capsule with a full glass of water. I make sure I have 64 ounces of fluids to help clear any toxic effect.

I feel like have no choice but control my platelets. If treated you can have a long life with ET.

Eileen

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