Every day is a good day: Meet @scottij

Nov 28, 2023 | Rosemary, Volunteer Mentor | @rosemarya | Comments (34)

Member spotlight: Meet Scottij

ROSEMARY: What brought you to Mayo Clinic Connect? 

@scottij: The cardiac transplant social workers at Mayo Clinic in Phoenix referred me to Mayo Clinic Connect. They felt it might be helpful in my recovery from the successful – so far – heart transplant I had on December 30, 2019. Also, I suspect that they thought I might have something to offer others. In turn, I suspect others may tire of my offerings. 

I have always known about Mayo Clinic. I grew up in northern Iowa, only a few hours from “The Mothership,” though people always called it “Rochester.” If someone had a difficult medical condition, they always went to a magical place called “Rochester” and most returned with good news.

ROSEMARY: What motivates you to take part in the community?

@scottij: Arrogance. Sheer unadulterated arrogance.

ROSEMARY: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@scottij: I have never been shy about sharing. It might be food, a ride, or even the less preferred things to share like opinions, perspective, or objective facts. But I have grown cautious about where I do so. Accordingly, my Facebook account is gone; as is Twitter (I shall not call it letter #24). I am no longer active on those social media due to the judgmental and pejorative responses to even the most innocuous observations. And while I have had a disagreement or two with people on Mayo Clinic Connect over providing medical advice or questioning the motivations of Mayo Clinic, it is a safe venue where people share. 

As a retired person (against my will), I am told that one of the leading causes of decline is not having a community. While I have strong face-to-face relationships in my community, I do enjoy the relationships cultivated on Mayo Clinic Connect.

ROSEMARY: What groups do you participate in?

@scottij: I primarily participate in the Transplants Support Group, obviously. It covers all the transplant categories and not just the toughest members of the transplant community, “the cardiac kids.” I have learned a bit about the challenges of the other solid organ recipients. We are all different and yet generally share one thing in common: gratitude.

I also follow the Chronic Pain Support Group as I have developed a variety of aches. Some are the result of my beloved immune-suppressant drugs. (I will find the inventor of tacrolimus one day and vengeance shall be mine.) And so, I have two new hips with the right one giving me pain of late. I also have sore hands and have developed immune-suppressed gout that shows up in my hands and toes. I mean, I never got the pleasure of over drinking or eating too much red meat and I get gout? There is no justice in this world.

ROSEMARY: Tell us about a meaningful moment on Mayo Clinic Connect.

@scottij: I found my donor family through Mayo Clinic Connect or rather, they found me. I promised myself to write a letter of gratitude every six months until my donor family answered or told me to shut up. I had sent five letters under the established protocol with no response. Then in June of 2022 I received a message on Mayo Clinic Connect. It was in response to my answer to the query of how to write a letter of gratitude to your donor family. I mentioned my intent to write on or near my anniversary of transplant, 12/30/2019, and at the half year point. Their reply had some urgency to it. They requested that I contact them immediately as they had something I needed to know. I responded and learned that the member suspected that she was the mother of my donor. She had been searching for me and when she saw the transplant date it corresponded with the death of her son.

I wanted to burst out in song, but I felt the need to be cautious. I wanted to verify the truth via those correct protocols. (I will not bore anyone here with those rules.) We finally confirmed with Mayo Clinic’s help that indeed this was my donor family. So why did she have to search for me if I had sent five letters? Sadly, they had never received any of my letters as the forwarding organization failed in their responsibility. I will cut them slack as they moved office locations, lost personnel, and the Covid-19 pandemic hit in 2020 which caused significant disruption and missed expectations.

My wife, Vicki, a.k.a. the Vickstress, or She-Who-Must-Be-Obeyed, and I have met with the mother and grandmother of my donor multiple times, and we stay in touch.

Every day when I complete my exercise routine, I pat my side and say, “Thanks J****.” Without him, I would not be writing this boring screed.

ROSEMARY: What surprised you the most about Mayo Clinic Connect?

@scottij: I am most surprised that I have stayed with it. I tend to get bored with things. As a skeptic, I often spot what is wrong with something before I enjoy what is right. Also, I feared that it would fall apart much like Facebook and become the realm of whiners and complainers. It has not. It is supportive, informative, and dare I say it, fun.

ROSEMARY: What energizes you, or how do you find balance in your life?

@scottij: Energy has never been an issue for me. Just after the transplant the nurses asked my wife how to slow me down and The Vickstress just laughed and said, “It is not going to happen.” 

Still, I try to intentionally seek balance across physical, mental, and emotional aspects of my life. Physically I exercise every day and for at least two hours, and include an hour long walk each day. I will not bore you with the details, but I am averaging 30,000 steps a day and I eat a healthy diet. 

Mental balance demands that I stay engaged so I am always reading though it is getting harder as I age. Afternoon reading often ends in unintentional afternoon napping. I have tried to insert fiction reading but I am prone to read non-fiction. 

Emotionally I try to connect with other people and keep my toe in the professional waters. I serve as the Chair of the Board of Advisors for the Dhaliwal-Reidy School of Accountancy at the University of Arizona (that is a mouthful). I also have a variety of mentees that still seek my counsel forhalf an hour every month to say hello and catch up.

ROSEMARY: Tell us about your favorite pastime or activity.

@scottij: B-ball, Roundball, Hoop, Basketball. Oh, I love that game. Is there any sweeter sound than nothing but net? The drive, the draw, the dish? About two years ago I organized a Friday morning league. You must be over 60 years old and under six feet tall. As ‘The Commissioner’, my nickname, I can waive the qualifications, so we have two diaper dandies in their late fifties and one player slightly over six feet tall. Our oldest player is seventy-six. In the depth of summer, we start at 6:00 AM and in the winter we start at 9:00 AM if it is warm enough. 

I do a weekly write up of the game in classic SportsCenter fashion: ‘Downtown’ Joe was on fire, ‘Slick Denny’ was a magician, Jim ‘The Rock of Gibraltar’ owned the paint. From a distance someone might wonder what these old men are doing on the basketball court because it may not look like basketball, but we have fun. No politics, no religion, just friendship and occasional glory-day memories.

ROSEMARY: Do you have a favorite quote, life motto or personal mantra?

@scottij: Oh, so many and they have served me well over the years. I cannot say one dominates as each has power in specific situations. I will limit the response to seven. (Seven, you say!)

Here are two from my dad. “Successful people have the habit of doing the things they do not like to do. It is not that they like them any better than others. It is the strength of their purpose that subordinates any distaste.” Whenever I do not want to do something, I hear my dad in my head growling that quote. I get up off my butt (Dad would be more graphic) and get busy. The second quote works for me when confronted with a challenge. “The opportunity for failure never obviates you from trying.” Dad did not mind failure if you learned from it.

And two from Mom. “Never forget that greatness is in you, but it is never of you. It will only come through you.” This has been true throughout my life. I receive copious credit for a variety of accomplishments, but I never did them alone. I had smart people along the way right by my side. And today, I have my donor, J****, literally by my side. Number two from Mom is, “It takes a long time to build an old friend.” This is a reminder to take intentional effort to build and sustain relationships and to do so over time.

On the spiritual side, I have two. As a natural born skeptic and cynic struggling to be a stoic with strong Buddhist overtones I use the reminder in Latin, “Memento Mori” or “Remember that you must die.” For me this is a call to live actively and correctly, and to cherish my second chance with the transplant. The reminder of death is not morbid but a call to life. And the other spiritual quote, in Buddhist tradition, is the phrase “Ko Paraga” with its multitude of spellings. It means “Anyone for the other shore.” It motivates me to make an effort to improve myself and my relationships.

Lastly, an overarching quote uttered every day in response to the common farewell of ‘have a good day’ is “Every day is a good day. Some days are simply better than other days.” I am not sure where this came from, but I have said it throughout my adult life. And it is not a passive statement but an active reminder to make the day a good day and better than yesterday.

And my apologies to the quotes that I have left on the sideline. You are important too.

ROSEMARY: If Hollywood made a movie about your life, who would you like to see cast as you?

@scottij: Well, my life should have a superb cast, but I am not sure what the plot would be. Given that I spent 20 years as an international arms merchant, I would have to say Liam Neeson and of course he would have to repeat the classic quote from Taken, “I have a very particular set of skills. Skills that I have acquired over a very long career. Skills that make me a nightmare for people like you.

And of course, I must have a female co-star, but no one is as beautiful as Vicki, so I am stuck.

ROSEMARY: Puppies or kittens?

@scottij: Puppies. Whenever a small child walks away from their home and the city begins a search, they find them with a neighborhood dog wrapped around them. The cat walks by with indifference. Puppies all the way

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@scottij

@pkh3381
P,
Thank you though She-Who-Must-Be-Obeyed believes you are giving me undue encouragement to continue with individual responses. The sin be upon you, my friend.
Best always,
s!

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😂😁P

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@scottij

@danab

Dana,
There is a small chance your donor family has not received your letters. As you know, you send your letters to the social workers at Mayo and they forward them on to the respective donor network. Then the donor network is supposed to forward them to the family. In my situation, Covid was in full swing at my first letter, June of 2020. The respective donor network for me (I will keep that private as I do not want to cast aspersions) was working remote, had moved offices, lost personnel and generally failed to do their part. When confronted by the social workers after I began my inquiry on validity of my donor and causes for the delay they were defensive and claimed they never received letters. Subsequently they "found" three of the five letters. No apologies to me nor my donor family but we are not interested in such. We are just glad we have found each other.

Now a caution, my friend. You do know that the response rate is low. the last I heard that was while the heart is highest of solid organ transplant responses from donor families it is still only 12%.

Out of interest, how often do you write your letters?
Best always,
s!

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Im in my 6th year and have written 2 the first about 8 months post and the second about a year later. Based on what you said I will start writing more often.
I was concerned maybe they were not ready so I would wait a bit. Iver heard its about 5 years to traditionally mourn over a loved one. I myself lost a daughter 4 years ago but for me I would have written back with no issues. She was unable to be a donor . But I includded that in the second letter in hopes to build a bond with the family. So Hard to know what to write sometimes.

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@rosemarya

Scott, @danab -I wrote to my donor family and I received a letter from them. But before I received it, the donor network notified me and asked whether I wanted to receive the letter. I was told that the donor family gets the same option of whether or not to accept the letter. This is because of the many deeply sensitive issues that accompany the sudden loss of a loved one when the family is still grieving. I also learned that addresses change often and the donor network is not able to reach them.

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I wish then we could at least know that part. If they were unable to deliver the letter.

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@danab

Im in my 6th year and have written 2 the first about 8 months post and the second about a year later. Based on what you said I will start writing more often.
I was concerned maybe they were not ready so I would wait a bit. Iver heard its about 5 years to traditionally mourn over a loved one. I myself lost a daughter 4 years ago but for me I would have written back with no issues. She was unable to be a donor . But I includded that in the second letter in hopes to build a bond with the family. So Hard to know what to write sometimes.

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@danab
Dana, I am sorry for your loss. You are so right in stating that we cannot understand how others process grief. And while we write letters to the surviving family to offer gratitude, we cannot know how it is received. I wrote in gratitude, but I also wrote, a bit selfishly, for myself so that I could process what had happened to me. Even if you do not send the letters, write them. It will be good for your own soul.
Best always,
s!

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@scottij you are a bundle of positivity! I love it. Thanks for sharing this with us. I laughed out loud at “she who must be obeyed.” My late husband called me that when he thought I was being particularly intractable in a “request.” Can you imagine? She must be fabulous.
Best wishes for continued good outcomes.
Patty

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@pmm

@scottij you are a bundle of positivity! I love it. Thanks for sharing this with us. I laughed out loud at “she who must be obeyed.” My late husband called me that when he thought I was being particularly intractable in a “request.” Can you imagine? She must be fabulous.
Best wishes for continued good outcomes.
Patty

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@pmm
Patty,
I am glad I could bring a smile to your face. She-Who-Must-Be-Obeyed is fabulous. We are celebrating our 45th wedding anniversary tomorrow though I like to say that we have been dating, mating, and cohabitating for 50 years as of last October 6. As for good outcomes, my donor was a young man in his twenties and when The Vickstress was informed that the heart was very healthy and I could live into my 90s she said, "Can we cut that back a bit?"
Have a great weekend and...
Best always,
s!

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A most interesting spotlight @scottij. I so enjoyed your frankness and sharp wit. I read and then had to re-read that at some point in your life you were an "arms merchant". I confess, the first image that popped into my head were boxes and boxes of mannequin arms. I seriously doubt these are the "arms" of which you speak. Pretty cool job, I can only imagine the places you've been and things you have seen. It sounds like your life has already been made into a movie or two.
Intrigue.
Danger.
Far away places.
Dark and smoky backrooms that smell like goats...If your passport(s) could talk, I wonder what it would say?
You have been through a lot since 2019, and no doubt your attitude has had a lot to do with your positive outcome. Of course, your not-so-secret weapon, Vicki, must take some credit. She sounds like a saint.
Thanks for sharing with the community. This Mayo Connect is indeed a unique place where people can share, compare, and learn from each other. I'm glad you are here.
Blessings from the Karuk

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@karukgirl
Debra, are you by any chance a member of the Karuk Tribe? Hailing from Arcata leads me to believe that was a possibility.

Yes, being an international arms merchant was a cool job. It was no plan of mine; I just got sucked up into the Reagan defense buildup and found myself out of the country for two to three weeks every month. As you imply, I had multiple passports at the same time -- three in fact -- because at that time, you could not have an Israeli entry stamp in your passport and get into Arabic countries and the same thing went for India/Pakistan. And you could not carry multiple passports with you in the event you were subject to the occasional full search so we used a series of safe houses in Europe and Asia to exchange passports when necessary. Real Jason Bourne stuff.

In the summer the family would accompany me, so they got to see a lot of the world with me. I have experienced more than my share of strange smells, a few backrooms, and different customs. I embraced it all.

Vicki does get a lot of credit, not the least was dragging me to the emergency room against my will in March of 2019 because I could not breathe. When confronted with the diagnosis and with tears in my eyes I stated, "This was not part of the f'n plan." To which she then grabbed my hand and said, "Then we change the f'n plan."

Best always,
s!

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Just awesome and an inspiration! Thank you Scott.

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@gerryp
Gerry,
Many thanks. I am honored. Good luck with your new liver. While heart transplants have their own challenges, I am not sure if I could handle the liver transplant side effects.
Best always,
s!

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