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Mycophenolate or Myfortic: Do you have GI side effects?

Transplants | Last Active: Dec 2, 2023 | Replies (54)

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@janni1

Rosemary,
I have been off the Mycophenolate since July 22
And unfortunately, for me, with the steroids I put on my lost weight and more as my kidneys are failing and I am a little water blob full of fluid. Hopefully once my kidneys are sorted I will get to some normality and things will even out. I can't wait to be honest.

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Replies to "Rosemary, I have been off the Mycophenolate since July 22 And unfortunately, for me, with the..."

@janni1, For what it's worth - I regained my weight after my transplant, too.
Prednisone does encourage weight gain, and your additional fluid retention with the current kidney failure is a big part of the added weight and discomfort. I am crossing my fingers and my toes that you will gradually experience improvement.
Have you been encouraged to make any dietary/nutritional adjustments at this point?