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Neurosurgeon visit: Should I get another appointment?

Posted by patbaret @patbaret, Nov 15, 2023

Should I get another apt?
Discovered I had a 12 mm meningioma after MD ordered MRI for inner ear problem.
I went to first apt yesterday after waiting weeks. Apt very short. He came in, looked at disk pictures and said he is not doing surgery at this point. Wait one year and get another MRI. If it grows, I can zap it. I guess he means gamma knife or some type of radiation. Did not seem to think my vertigo and hearing issues had nothing to do with my tumor. It is 1.2 cm. I was glad to hear that I-can
wait another year. Any comments please. It is a right front forehead with no major vessels surrounding it.

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patbaret | @patbaret | Nov 26, 2023

I am so confused about which type would be the least risky, but still take care of the 12mm frontal angioma. I see a NS at Tampa General and will have to do my homework and see what they have to offer.
Thank you for your help.

REPLY
birdie1234 | @birdie1234 | Nov 26, 2023
In reply to @colleenyoung "@birdie1234, there seems to have been some miscommunication. I suggest calling Mayo Clinic in Jacksonville again..." + (show)
@colleenyoung

@birdie1234, there seems to have been some miscommunication. I suggest calling Mayo Clinic in Jacksonville again to clarify. Meningiomas are treated at Mayo in Florida. Without knowing the specifics of your situation, I can only venture to guess that there was miscommunication or it is possible that your situation needs care or treatment like proton beam only offered at the Rochester location.

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Thanks Colleen...I will call again. I spoke to a young lady there that was very definite that they did not treat Meningioma's at the Jacksonville location. I will call again tomorrow and I hope the person that was on here that I told that Mayo/Jacksonville doesn't treat Meningioma's reads this and calls there also. I think they need to train their employees better in Jacksonville!! Thanks for your help!!

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cscmaryann | @cscmaryann | Nov 27, 2023

Make sure patients/clients understand that Mayo in Jacksonville may not accept their insurance even though Mayo Rochester might. They have independent insurance situations. I do not know about Mayo AZ.

REPLY
birdie1234 | @birdie1234 | Nov 27, 2023
In reply to @colleenyoung "@birdie1234, there seems to have been some miscommunication. I suggest calling Mayo Clinic in Jacksonville again..." + (show)
@colleenyoung

@birdie1234, there seems to have been some miscommunication. I suggest calling Mayo Clinic in Jacksonville again to clarify. Meningiomas are treated at Mayo in Florida. Without knowing the specifics of your situation, I can only venture to guess that there was miscommunication or it is possible that your situation needs care or treatment like proton beam only offered at the Rochester location.

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Colloeen......I guess this question is back in your lap. I called Mayo/Jacksonville today ( second time) and they once again told me they do not treat meningioma tumors. ( cervical ) I spoke to a different young lady this time named Rene in the neuro dept. and she checked with someone to give me the same answer. We would like to go to Jacksonville as they are much closer to us than Rochester. Is Rochester my only choice?? Thanks for your help!

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 30, 2023
In reply to @birdie1234 "Colloeen......I guess this question is back in your lap. I called Mayo/Jacksonville today ( second time)..." + (show)
@birdie1234

Colloeen......I guess this question is back in your lap. I called Mayo/Jacksonville today ( second time) and they once again told me they do not treat meningioma tumors. ( cervical ) I spoke to a different young lady this time named Rene in the neuro dept. and she checked with someone to give me the same answer. We would like to go to Jacksonville as they are much closer to us than Rochester. Is Rochester my only choice?? Thanks for your help!

Jump to this post

I'm on it.

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