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Essential Thrombocythemia (ET): foods, diet, nutrition?

Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)
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@judyar

Thank you you made me feel more hopeful. I am 78yrs. old and was just diagnosed with essential thrombocythemia.The 3rd part of my bone marrow test is not in yet. I’m hoping nothing else is found. I am supposed to start hydroxyurea one capsule daily 500 mg. But I have been afraid to start it. I am also on Eliquis for my a fib so maybe I still need to take 81 mg of aspirin I don’t know. I guess I have no choice, but to start the hydroxyurea. I am so afraid of the side effects, I just don’t want more problems, but I don’t want a heart attack or a stroke either. i’m happy to hear you are doing well with the medication.

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Replies to "Thank you you made me feel more hopeful. I am 78yrs. old and was just diagnosed..."
eileen11108 | @eileen11108 | Dec 1, 2023

Hi @judyar

I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea different daily schedule for 1-1/2 years. I now take 500 mg four days a week. I had headaches in the beginning but it has leveled out.

I was already on Eliquis for AFib so my hematologist told me I did not need the low dose aspirin.

Since you are so hesitant to start Hydroxyurea maybe you could ask your doctor if you could start taking three days a week or every other day.

Remember to drink minimum 64 ounces of fluids when you take it.

Best wishes, Eileen

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