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How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Blood Cancers & Disorders | Last Active: Mar 29 8:26pm | Replies (113)Comment receiving replies
Hi - I am new to this group and new to being diagnosis with ET (Platelets) and PV (RBC). I was diagnosis with Essential Thrombocytosis and I am not certain if that is the same as Essential thrombocythemia (ET). My current treatment plan is 1 low does Aspirin and Hyrdea. I inquired directly with my Hematologist to determine why I am not a candidate for Phlebotomy but am awaiting an answer. Do any of you know when or under what conditions this becomes a part of your treatment plan? Regarding fatigue, I have been fatigue for five years and did not know why. Had annual appts and Doc never had answers. My daughter this year was the one that really urged me to stop taking "I don't know" for as an answer and my full blood count revealed PV and ET. I am open to any info willing to share.
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Hello, I was diagnosed in Jan with PV. I too take a baby aspirin and Hydroxyurea. I am treated with phlebotomies too when my hematocrit goes above 45. I asked if I could just do the phlebotomies more often and not take the meds and was told that you NEED to take the meds to lower the platelets and that only your hematocrit can be controlled with the phlebotomies. Does this help? How is your hematocrit? If it’s not high maybe this is why you aren’t having them? I took 500 mg of hydroxyurea 7 days a week and about 6-7 months in I went down to 3X a week which made a huge difference in the side effects. ( sensitive gums, hair loss, brown spots on skin) All have pretty much gone away. My doctor said that most people’s body can and will adjust in time. Hang in there!