Hyperaldosteronism

Posted by bjfons @bjfons, Jul 21, 2022

My son in Milwaukee had a blood pressure of about 250 and doctors were thinking that he may have Conn's Syndrome or hyperaldosteronism. They have done cat scans of his glands and put him on medicine to lower his BP. They say all is OK and he should just stay on meds. He is still having symptoms like mood swings, fatigue, muscle aches and excessive urination and I'm wondering if he can have a second opinion from the Endocrinologists at Mayo.

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florentina99 | @florentina99 | May 20, 2023

Hi, I am a little confused...
Are you saying surgery is essential for hyperplasia of the adrenal gland, as both of my glands are overproducing aldosterone?
I have been told my treatment is medical ie spironolactone but I feel dreadful and full of anxiety.
No tumour seen on all 3 of my scans now.

florentina99 | @florentina99 | May 29, 2023

I had a late diagnosis of hyperaldosteronism (approx 10 years) I am developing complications in my abdomin like constant fullness and bloating,pain in right shoulder( right hand dominant) dizziness ,and feelings of resistance in my heart.
This is all much worse after any exertion( even light house duties),exercise or meals.
Am I wondering if this is blood flow related or neuropathic pain.?
Tests so far have revealed nothing.
My Dr refuses to send me for an angiogram but the pain especially in abdomin is getting worse.
I have been to A/E on 4 occasions to be sent home(still in pain) because my blood results are normal.
Not sure what I can do now?
I live in UK .

florentina99 | @florentina99 | Aug 26, 2023

Hi , been on this chat before.
My BP and K are both lovely and stable and have been for 2 years plus however I have been left with the most awful pain in my upper back between the shoulders which is even worse with movement. Also abdominal pain after meals, so much so it is causing me to restrict my food intake.I am only slim anyway and don't want weight loss as well.
I've had blood tests and scans but nothing is showing the cause of all this pain, Drs just keep giving me stronger pain meds to get thru my day.It is sooo frustrating having unexplained pain.Im now thinking nerve damage or vascular involvement,I am breathless only slightly on exertion but I did have massive high blood pressures previously and very low levels of potassium previously.It didn't help that my vitamin D was very low too, that also has been corrected.
Any suggestions, anyone?

florentina99 | @florentina99 | Nov 29, 2023

Does anyone know the life expectancy of someone with Primary Aldosteronism?
I understand that cardiovascular complications are often the problem with this awful disease.
More Doctors need educating on this, as a simple dose of medication can save your life it the diagnosis is made early enough.!