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DiscussionPulmonary Embolisms (PE) That Magically Develop - No DVTs
Blood Cancers & Disorders | Last Active: Aug 30 11:28am | Replies (12)Comment receiving replies
Replies to "Lori, I have never heard of Factor V Leiden. I ended up with a DVT in..."
@katgob if they are testing you for Factor V you may wish to get tested for Factor VIII also. HIGH Factor VIII also is a reason to clot too much. But there is a whole panel related that they could run too, so definitely see your hematologist and seek a second opinion if you don't feel you are getting answers.
@katgob. If you are prone to blood clots it’s important to do everything you can to prevent them, of course. You’re wearing compression stockings, which are great for helping blood to circulate and keeping it from pooling in your legs. But they won’t prevent clotting if you have an underlying condition such as thrombocythemia in which your body produces too many platelets or Factor V Leiden, which inherited blood clotting disorder that raises your risk of abnormal blood clots.
These are only a few examples and not meant to alarm you. But I think it’s important to bring it to your attention that there may be underlying issues which could be the cause of your history of clotting.
There are also risk factors like smoking, infections/inflammatory diseases, sedentary life styles, being overweight or being descendants of people who have clotting disorders. https://www.cdc.gov/ncbddd/dvt/features/blood-clot-risk.html
I’m not sure what tests you’ve had run to see if there are any potential disorders. But there are simple tests to measure clotting times, CBCs to check the amount and size of your platelets along with your red and white blood cells. Genetic panels can be run to see if you have any gene mutations, either hereditary or acquired, which are causing the clotting issues.
Do you know if any of those tests run done for you? Has a doctor mentioned taking baby aspirin daily as a way to prevent clots?