endometrial (uterus) cancer and endometrioid (ovary) at the same time

@diana270 While we wait for other members to respond to your post I'd like to say that this must be very stressful for you. How are you doing with all of this? I hope you have good support from your family, partner/spouse and friends.

Are you waiting for a pathology report or another kind of testing to find out if these EIN hyperplasia and ovarian tumor are related? Is the plan to remove all of the deep pelvic lymph nodes on the side where the ovary was removed?

I had endometrial cancer and had a radical hysterectomy with ovaries and fallopian tubes and cervix all removed. The surgeon did a sentinel lymph node biopsy on both sides and these were both negative. So no other lymph nodes were removed. I was worried about the cancer, of course, but also what would happen if the sentinel nodes were positive. The surgeon told me she would then remove the deep pelvic lymph nodes on both sides. I was concerned about the possibility of lymphedema. Is this a concern of yours?

Lymph Nodes and Cancer

-- https://www.cancer.org/treatment/understanding-your-diagnosis/lymph-nodes-and-cancer.html

When do you see your doctor again?

@naturegirl5 , I am definitely receiving lots of support from my family and friends. And I'm doing pretty well with all of this surprisingly.

I just received a report yesterday and the doctors say that it's difficult to find to tell if the EIN and Ovarian cancer were related but they believe that they are not based on different factors.

My gyn oncologist wants to remove all the lymph nodes from my understanding in the pelvic area, due to the EIN possibility being cancer by now since it's not responding to treatment. I was able to receive a second opinion this week and they believe that removing the lymph nodes and chemo are not necessary right now because they believe that the ovarian cancer had a low chance of spreading to the lymph nodes, just that they would monitor closely. In terms of the EIN/ Endometrial Cancer, they think its time for a hysterectomy. I have a lot to think about especially since the surgery and chemo are meant to be a preventive measure for future cancers in my pelvic region and I don't think it's necessary at this moment.

I am worried about effects like lymphodema and of course, all the side effects of chemo.

Here is my understanding regarding the lymph nodes. During surgery they inject a dye into the uterus that goes to the sentinel lymph nodes on each side first. They turn on a infrared light that makes them show up florescent green so they are easy to find. These nodes are the first ones the cancer would spread to so they remove those and send them to the pathologist during surgery to have them tested. If they test negative for cancer then they don't have to remove any other lymph nodes. If they test positive that's when they would remove more to see how far the cancer has spread.

This is from information I read prior to my surgery. My cancer is not the same as yours so that could make a difference! Hope it helps and/or you can ask your surgeon about this before your surgery?! I am praying for you!❤️🙏❤️

@diana270 That's great that you got a second opinion. You do have lot to consider and ultimately it's your choice what you want to do. Since these future surgeries and chemotherapy are preventive it makes sense to take your time and consider the possibilities.

Do you have any other appointments coming up?

Sorry that I didn’t reply at the time. I didn’t get the surgery or chemo back in February/March based on recommendations from my second opinion.

@diana270 Thank you for letting me know what you decided. Will you continue to see the doctor who offered the second opinion? When is your next appointment?

I followed up with my original doctor back in May/June but then he told me he was leaving for another hospital. So I decided to just come back to my second opinion which was to a surgeon from MSK in September. By then my endometrial cancer wasn't looking too good so I had to get a total hysterectomy around the end of October. My recovery was amazing and I'm back at work.

@diana270 Thank you for the update. It’s great you are recovered from the hysterectomy and back at work. Will you need any additional treatment? How are you feeling?

Unfortunately, I will be getting treatment since the cancer spread in the area. It will be a combination of chemo and radiation. I'm okay with it, just trying to stay positive as much as possible.

@diana270 When I had radiation therapy every day for 5 1/2 weeks I kept up my exercise routines and “listened” to my body. The radiation oncology department had signs with the word “Hope” and I received a pin with “Hope” on it after I finished the radiation therapy. I didn’t have chemotherapy and I understand it depends on the medications on whether you feel a lot of fatigue and other side effects. I know the medical staff does all they can to provide patients with the care that will minimize side effects.

I wish you Hope and a gentle hug. Will you come back here and let me know as you go forward with your treatment?