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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 3 hours ago | Replies (7051)Comment receiving replies
Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks
Replies to "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..."
Going gluten free is good for reducing inflammation of all sorts. I think everyone should try it for a month to see what happens. My Psoriasis went away and my wife's digestive issues vanished as well. You don't have to allergic to gluten or have celiac disease to be negatively affected by gluten. Buy "Three Bakers" Ancient grain bread, never Udis's, and use Jovial noodles. Those two brands are the best. Any brown rice noodles are OK but Jovial actually taste like real paste. The others taste like a bowl of brown rice which is OK if you want brown rice. Not so much if you want pasta. Pasta made from corn and white rice are lacking flavor and texture. Regular Asian Rice Noodles are great but they aren't pasta. Inflammation is at the root of many conditions including arthritis and cancer. It's worth the effort to try.
Thanks.
@springwater absolutely Gary is right about gluten the tea helps also ,ginger and turmeric are anti inflammatory fighters as well as organic honey. Another came to me is it fibromyalgia?have you seen a rheumatologist?They will be able to tell you ,sorry I think I'm repeating myself,sr.moment lol,
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Hello @ springwater; I am Gary and a volunteer mentor. Could the cramps be related to hydration? I know that seems simplistic, but disease and prescription meds can lead to dehydration even if fluid intake is good. I have bad foot/leg cramps almost nightly, but I stay dried out because of diabetes and some of my meds and I consume about 12-15 cups of water daily. You are right about the effects of being on sun=ch high doses of antibiotics repeatedly; your immune system can become compromised and your gut ecosystem is devastated. Magnesium (another mineral depleted by many prescript. medicines) and an anti-oxidant supplement seem to help some with my leg cramps. As, others have said, I am certainly not a Dr., but do have way more experience with pain than I would ever want for me or anyone.
Blessings and best wishes, Gary