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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 49 minutes ago | Replies (7051)Comment receiving replies
Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks
Replies to "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..."
@springwater Just said a prayer for your wife and you I can't imagine the pain she is in.As a suggestion ,have you ever seen other avenues to complement what your Dr.is trying ,for instance ,see a nutritionist as certain foods give detrimental problems or see a holistic Dr.herbs and homeopathic meds in the right doses might help and a Holistic Dr might help .Spiritual blessings to you both
We have cheated magnesium and calcium, pickle juice, cannabas, in several forms at times seem to relax her and many natural aids Parkinson's gro has told us. Her pain is different. Have essential oils. Have tried so much, just know drugs that docs give you make things worse. She took mestinon for 2 weeks and stop, I did not tell that in original post. That was my first post.
Thanks too all
I have tried to get in to natural path but to busy, even when tell them what we go through seems as no one cares. We have been to different docs they do not have a clue and not care she in in pain. I have turmeric, cayenne pepper mix in oil, it appears may be relief at times depends on pain. Thanks all for prayers and your feed back. We live in the country and were very active and that is what hurts us both not being able to work with our chores, very emotional.
Thanks
...as I sit here all day listening to my husband screaming in pain...honestly, I have no advice.
@jupiterkaren can you please tell us why you husband is in so much PAIN
I feel sorry for you both we know how you feel, God bless you. I take it you have tried dinger water and honey, spoon full mustard, pickle juice, turmeric, exercise helps release natural pain relief. Just thought would mention.
Sorry that is vinegar, water and honey.
Fell on shoulder went to er went to dr did a c cleanout in shoulder removed bone spurs. Constant pain. Went to 2 neuros no answers ortho said he's fine (not) 2 shots one in neck one in shoulder no relief. Feeels someone stabbing him. Can't find answers. Silently dismissed. Our lives have become insane. Have appointment with Cleveland Clinic Friday. Exhausted , sad, etc....oh 2 trips to e. R . Drugged let him go....really? I called insurance company asked for patient advocate, asked hospital for social worker both times in e r. Never sent anyone. Pity party today forgive me for complaining, but we have no answers., hub lost 40 pounds, upset, in bed every day, and the world around us goes on.....
@jupiterkaren Have you tried anti-inflammatory medicine or muscle relaxer Dr.prescription.Maybe a chiropractor would be able to help or accupunctur .Ive studied holistic medicine for along time and some I've found to help me with my pain are ginger-Tumeric tea from Trader Jo,s,Arnica cream CVS .These two help me everyone is different but it's worth a try ,there is also heating pad Epsom salts or vinegar water to relax the muscles,hope any of these suggestions will help.
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Not dr. Have hub in horrible pain.....I feel for yo. Exhausting. I pro does have horrible side effects. One day at a time. Get topical magnesium to rub on legs maybe and also a good probiotic since the strong antibiotics can do horrible damage too. I feel for her. I feel for you. Prayers. And wishes.