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Essential Thrombocytosis: What amount of hydroxy do you take?

Blood Cancers & Disorders | Last Active: Apr 14 10:05pm | Replies (77)
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@nohrt4me

I've had ET-CALR for 15 years. I'm on 1,000mg 3xweek + 500mg the rest of the time. On that dose for last five years. Feeling OK, with the ups and down with fatigue and brain fog, skin/hair/nail changes (get a good moisturizer). Drinking 64 oz water every day + daily exercise and fresh air help. Just got out my old wool blanket so I can continue to sit on the porch for in afternoon to watch the birds at the feeder. Michigan winter has arrived! Watch your stress levels. I don't find that stress increases my platelets, but it is easier for me to get overwhelmed if I don't pace myself.

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Replies to "I've had ET-CALR for 15 years. I'm on 1,000mg 3xweek + 500mg the rest of the..."
magnolia1949 | @magnolia1949 | Nov 28, 2023

I agree how important it is to stay positive; I walk every day weather permitting, drink plenty of water and eating healthy. I tend to worry about things (children, grandchildren) but I'm not as bad as I used to be about things that I know are out of my control. I think the 1,000mg of hydroxy tends to make me feel very tired alot of the time , but I am very thankful that is the only side affect I have. It could certainly be alot worse. Hope you keep doing well!

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