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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@flamingal

We are so much alike - my lumbar MRI revealed Bastrop's (kissing disease of spine - horses crumble to ground when their spine is touched) and a rare Tarloc cyst, so PC right away says injection - NOPE. have so many trust issues with the "specialists" and their ghastly incorrect visit notes = which the medical corp will not force them to correct (have lawyers on speed dial in case reason does not prevail). Have systemic sclerosis (rare), Zoster sine herpete (internal shingles, can be life threatening if it so desires), PHN, TN, and treating my sweet old dog for an activation of their ordinary staph - MRSP - methicillen resistant staphylococcus pseudintermedius - confirmed by 2 cultures a month apart by 2 vets. can do to them what MRSA does to us. Problem is - is rarely zoonotic to humans but is taking hold in Europe since 2006. am at end of nice rope trying to get locals to test me per the vets' strong recommendations, was treating dog bare-handed before results back. Like the saying - the chances of being killed by a bunny are low, but not zero. and what is does to humans can be serious, especially to the senior and/or immunocompromised. One good thing in all of this - like yourself, i have been thru so much at this age, all i want is answers so i can take care of myself, decide for myself, and be responsible for myself - as long as we can. My radar is on constant blip - but a hoard of Justin's dark chocolate dairy-free mini peanut butter cups - 2 a day medicinally, cable tv, amazon prime, netflix, paramount+ (maybe others in time) few good friends locally, a 1st cousin downstate with as much genetic garbage as i have, my rescue dog, cats and cockatiels keep me busy enough. Am finally at age where don't have to, don't want to, can't make me, but i'm here if needed. My bucket list had only one thing - and i got that 18 years ago - a 2001 Jeep Cherokee (last of the real Jeeps) - and an amazing car guy/human being literally around the corner from me, just now replacing 23 yr old parts. he's saved me $64, 800 in car payments on recycled soda cans on wheels. After 31 years as a volunteer state and federally licensed wildlife rehabber, had to retire, but after being only one in 4th largest county in state, can rest easy as 7 others, including a vet, have stepped in. So in my "moments" i know i am in a better place than most. Can sit for 2 days (between chores) knitting a hat from a cherished skein of yarn - for myself while bingewatching (a show i never thought i would watch). Totes of fabric, no mortgage or car payments, senior tax breaks, HEAP - almost feels selfish (not permitted in our generation, especially girls) to not do anything i do not want to do, but i will yield to it. I do not envy the "youngers" - what survival skills are they gathering for their futures - i thought it a big deal to turn 25 - 1/4 of a century. I go back to when i told our friend group to remember what it is like being 34 as it will soon pass; wonder if they do. or if they have. Am off to dermatologist - had many spots removed over years, one on bridge of nose looking like Rudolph's, so will get checked. I told her if i ever need anything else removed or amputated, she is it - no one walks off with any part of me but her (and they actually called on the telephone after a portal message) After possible ghosting and gaslighting elsewhere, is some-one to trust. She earned it - deserves it, and am grateful for it, Keep in touch - was dragged kicking & screaming onto the information superhighway, but have found good in it.

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Replies to "We are so much alike - my lumbar MRI revealed Bastrop's (kissing disease of spine -..."

God bless you! Certainly have a host of things to deal with, and an overflowing plate for sure.
But your sense of humor comes through clearly....as I said, God bless you!🤗