Anyone have nutcracker syndrome?

Posted by lasirvent @lasirvent, Jul 3, 2019

After 15 years, I have just been diagnosed with Nutcracker, but have other issues so going through more testing.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

There’s a Facebook group Nutcracker Syndrome that has a lot of information on doctors and procedures for NS. Make sure you go to a knowledgeable and experience physician that has treated others. So sorry you’re dealing with this.

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37 yr old mom of 2. I feel every word of this. I'm going on 9 yrs without treatment other than May- thurner. I believe I have nutcracker and popiteal at the same time. I pray for you. Stay strong.

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Hi I have been diagnosed with Nutcracker Syndrome through Dr Hong Park an Interventional Radiologist with Lutheran General hospital in Park Ridge IL. He treats pelvic Congestion with stents but recommends surgery for Nutcracker syndrome. He has told me he is now bringing my case to a board of drs at the University of Chicago who have unit there that specializes in this syndrome/surgery.

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44 yrs old n just found out in June I have this along with stage 3 ckd last year. As long as I can remember I have had nausea vomiting diarrhea bloating headaches period probs... endometriosis also. Mine is causing my ovarian veins to become enlarged. I've had pain meds nsaids heating pads for the past 10 years n nothing helps. Met with vascular last month but they're unsure if my symptoms are coming from the NCS or my other probs so I have to get with kidney n obgyn to have everything else checked out. I hope she can get some answers n get em quick. Idk how old she is but like I said I'm 44 n all my life I've had probs. It sux going thru life not being able to go anywhere or do anything cuz u don't know when yur going to get sick. It'll just hit n hit hard sometimes.

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@lisabeckham98

44 yrs old n just found out in June I have this along with stage 3 ckd last year. As long as I can remember I have had nausea vomiting diarrhea bloating headaches period probs... endometriosis also. Mine is causing my ovarian veins to become enlarged. I've had pain meds nsaids heating pads for the past 10 years n nothing helps. Met with vascular last month but they're unsure if my symptoms are coming from the NCS or my other probs so I have to get with kidney n obgyn to have everything else checked out. I hope she can get some answers n get em quick. Idk how old she is but like I said I'm 44 n all my life I've had probs. It sux going thru life not being able to go anywhere or do anything cuz u don't know when yur going to get sick. It'll just hit n hit hard sometimes.

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@lisabeckham98, that's a lot going on. Have you met with the kidney and obgyn specialists? What have you learned? Next steps?

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