← Return to Fibromyalgia pain: Let's connect

Discussion

Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

Comment receiving replies
@flamingal

Except for the meds, i am same at 76+; my 50 years instinct that drugs, i including OTCs - (astronauts took Actifed no-drowsy into space, "spaced" me out of consciousness) are not my friends, 2 ER visits, past & this summer for severe ADRs, gene test proved me right. can only tolerate the acetaminophen/ibuprofen, so that at night to help sleep. Also several "rares" that have no cure or effective treatment, so DIYing myself. The BP issue many actually be a cervical situation, not systemic (although have 2 likely suspects) so feeling need to go from NP to Osteopathic MD - like the integrated approach instead of just targeting. Have lost days - had to check TV guide to paper calendar (no-tech flip phone) on one occasion as same name shows both days; have city trash collection - more than once had to bring back due to Monday holiday for workers, but not me; spine issues can be helped by just laying down relieving physical stress - often take unintended, but refreshing naps. Seems the child of an anesthesiologist and public health nurse does not get any free passes! (but did get the familial dry wit and offbeat sense of coping humor - almost better than drugs. almost). Sorry we are in these messes, but grateful for the company.

Jump to this post


Replies to "Except for the meds, i am same at 76+; my 50 years instinct that drugs, i..."

The adage goes that "Misery loves company" but while it helps to know we are not alone in our various states of "misery," it is indeed disheartening to have to live with daily pain, albeit at various levels/intensities.... unfortunately for me, the overall diagnosis is "chronic pain syndrome," which is umbrella term for the way too many sources of daily, non-stop pain.
I, too, have spine issues. Learned just how extensive and serious they are when a pain management doctor ordered an MRI of the spine back in Jan/Feb of this year. While the results did shed lots of light on the "why" of my back/spinal pain and the shooting electrical jolts leading to my appendages, it all made me feel that much more determined to continue being ever-vigilant and protective of whatever procedures, drugs, injectables, etc. any professional says is an avenue for relief. I analyze and trouble-shoot, and have no qualms about saying "While I acknowledge your expertise and medical training, I respectfully do not accept that proposed plan." He had proposed a "nerve block" into the lumbar area. Uh-uh! Have had pain in that area for years, diagnosed as sciatica, which affects buttocks down to the feet. Learning that I have bulging discs, degeneration, and arthritis in that area explained a great deal to me. I had no idea that spinal stenosis also existed in my body, in addition to cervical arthritis. Really explained a great deal about the various problems and pains that other doctors had pretty much shrugged their shoulders and chalked it up to "you ARE getting older, and the body will tell you that with what you're feeling." Balderdash! Yes, I'm aging and accept that but do not use a blanket term for what my body tells me.
I recall when our kids were younger (three under the age of 10 at the time) and one male doctor told me to "...just get into bed and allow your body to rest and sleep." Seriously? I became pretty peeved and retorted "So you're volunteering to come home with me and take over the care of my three kids AND the cooking and housework also?!" His whole composure disintegrated, and I never returned to his office again. No, mothers don't get reprieves at all...
As women, we have it in our DNA to be caregivers, and not care-recipients...we just keep on going.
You are correct that a bit of humor can help, and smiles are visual hugs. Finding a ray of joy in each day is also helpful, because a positive disposition, smiles, and laughter rush endorphins to our brains. Something else that I've adopted for my self-care: I just LOVE to slip on those foot-mask socks, elevate my feet, and watch whatever I choose on TV. A hot pad around whatever body part needs it is the icing on the cake!
May you find many moments of humor and joy, give and receive visual hugs, and pamper yourself when you can.💖

I like you, have had FM over 40 years.. I'm sorry you are not able to take codeine but I understand because I tolerate no FM meds. I can't nap or don't sleep at night. I am able to take low dose clonazepam for sleep, perhaps you could try?