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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (774)

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@diana59

I was diagnosed withMGUS in 2022. I saw a hemologist who resured me to follow it. If i get bone pain to be seen. I went to my Family Practice doc. who diagnosed my hip pain as bursitis. Three weeks later I still have hip pain, have developed knee pain. Maybe because Im not walking right? I now have so much pain in my foot it hurts to walk. I dont want to be paranoid baut I really feel something is not right. My FP wants to give my me a steroid injection in my hip. I would like to have an MRI. Is that unreasonable? What should I try first? Kinda scared.

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Replies to "I was diagnosed withMGUS in 2022. I saw a hemologist who resured me to follow it...."

@diana59 , I would insist on some testing. Mayo NEVER prescribes anything without further testing.
It's just so strange...seems most primary drs prescribe a bandaid, no tests. Mine does the same thing, so I rarely bother to complain to him...I wait till I go to Mayo. That said, there were times I felt like toooooo many tests were being done, so I now speak up about that, necessity only. I went through ALOT!! Hope you get to the root, and then only treat accordingly.

@diana59 Welcome to Mayo Clinic Connect.

Are you being followed by a hematologist oncologist? In my experience, a family practice provider simply does not have the knowledge to work with MGUS patients. I would at least check with your specialist to get their opinion, so you can consider what your decision will be.

Will you let us know what you find out, please?
Ginger