← Return to Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

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@william1970

Lori,
Thanks for the ideas!
As of now, I only give him like 1 tablespoon of food at a time. I also keep jello made & pudding....those are his favorite.
He only takes steroids 1 hr. Before chemo.
I'm going to contact hemotology/oncology if it continues tomorrow.
To be honest, I'm worried.... I watched my Dad die in 2008. We found out May 2 Dad had cancer, (weighed 160 lbs),PET testing the 5th, results the 7th & he was dead May 22, 2008 weighing 94 lbs....so, I guess I'm a bit freaked out..
I'm so glad there's a support system on here & I am grateful for your advice.
Lisa

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Replies to "Lori, Thanks for the ideas! As of now, I only give him like 1 tablespoon of..."

It’s perfectly understandable to get a little freaked out when someone you love is going through cancer treatments. I had several members of my family pass away from cancer over my lifetime and it leaves a huge impact. But it doesn’t mean we will have the same outcome.

I’m so sorry for the loss of your father. Some forms of cancer can be difficult to diagnose or sometimes symptoms are subtle, until they aren’t. Extreme weight loss for no reason is one of those potential indicators.

However, William has Multiple Myeloma, it’s been diagnosed and being treated early. I know the nausea from the chemo is pretty awful but it will get better and he’ll get through this part. He’s losing weight now because of the chemo, not the cancer per se. You’re doing all the right things in getting calories in him. While it’s important to get protein in, many times my doctor, nurses and the dietitian told me ‘just get calories down, we don’t care what you eat”. So there was a lot of ice cream. ☺️

Do you or William have any questions about the transplant coming up using his own cells?

Really sorry to hear that Lisa, and that William is so unwell.
Just thought I’d share what I used to make for my great aunt, my friends husband, and other relatives I’ve cared for through their palliative experiences, which they would say helped..
I think there it’s called farina (but not Italian farina), here it’s called semolina 1/3c. Milk (of any kind) 2c, water 1c, pinch salt, little bit butter or oil, teaspoon of sugar or honey, and a handful of chia seeds, simmered on stove (bring milk/water etc to simmer, remove from heat, whisk in semolina, return to heat, simmer 10, add chia seeds, simmer 5-10, stirring often).
This can be eaten warm or cold, and adding custard, yoghurt, or soft chopped/mashed fruit can work.
Pour leftover into glass container, cool, lid on and refrigerate for up to 3 days, and can be cut into little cubes and eaten in bites cool from the fridge (some of these guys used to tell me little bites cool from the fridge was easier to eat). It’s got protein, carbs, fibre, nutrients, and soothes digestive tract (chia is mucilaginous - replicating the good smooth mucous that lines the digestive tract which can help with less irritation). It’s cheap, and I still eat this myself when my colitis hits. Wishing you guys all the best.