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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (774)

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@canadabob

The MGUS was discovered by a neurologist 4 years ago who has been monitoring it every 6 months. I asked him for a referral to a hematologist and his answer was that “all they would do is take bone marrow biopsy”. I have no idea why he has this attitude. He’s not the expert on MGUS. Not by a long shot.

I have since convinced my family doctor to refer me and now I’m just waiting for the call.

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Replies to "The MGUS was discovered by a neurologist 4 years ago who has been monitoring it every..."

@canadabob , GREAT!!! My primary has said he can handle me too....yet he never found the mgus.
Mayo does an extensive bloodwork which they call a bundle test. I'm so grateful to be a patient there/have them as my drs...they are like guardian angels to me. Hope you get seen soon, my best to you!!