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Anyone had nauseous, gas burping as symptoms for NETs?

Neuroendocrine Tumors (NETs) | Last Active: Dec 1, 2023 | Replies (31)
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@tomrennie

Sorry, but I have no idea what any of this means. I had a lot of nausea, gas and burping prior to being diagnosed with a pancreatic NET in 8/22. I have done a lot of homework, but I feel completely unworthy to respond after this post. I wish the best for everyone.

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Replies to "Sorry, but I have no idea what any of this means. I had a lot of..."
coachv | @coachv | Nov 26, 2023

What I have learned is how little information about NETs is out there. And it is all in different places. I ran a couple of ChatGPT scans against NIH (National Institute of Health) published info and it very inconclusive. For example, should they alpha-blockers before and during surgery. Very polar items, yet, they all do tell you that going into PG or PH surgery without having hormone levels and symptoms under control will triple the risk. Best of luck to all of us here, our doctors, and our caregivers. We shall overcome.

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willam | @willam | Nov 26, 2023

HI,

Thank you for your response. Two questions
1- how long did you have your nausea, gas and burping prior to your diagnosis?
2-how did you get a diagnosis? mri? ctscan?

thank you

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