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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Mar 29 2:47pm | Replies (115)
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@joybannister

GCA, the black cloud hanging over the head of every PMR patient. My husband and I planned and paid for a bucket list trip to the BVI sailing for 8 days in May. I was diagnosed with PMR 3 months ago and currently tapering (with pain) but I am super stressed at the thought of getting GCA while on a boat in the BVI. The fastest I could make it a hospital would be many hours and would they even know what to do. Any thoughts?

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Replies to "GCA, the black cloud hanging over the head of every PMR patient. My husband and I..."
pag1949 | @pag1949 | Nov 25, 2023

Would the doctor give you a high dose of prednisone to take with you? check your Sed rate before you go. You should be able to get a blood test at an emergency clinic somewhere on the cruise to check it again. Just a thought…

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marilynredder2367 | @marilynredder2367 | Nov 26, 2023

I remember only having pain with a flare. Perhaps you can stay on low dose of steroid which would keep you safer while you’re away. Having a prescription for high doses would be good if you had a place to fill it.

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