Hi Bonnie,

I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis at Sloan in Manhattan in 2018. Not a good day but I got over the initial shock of the cancer diagnosis. I’m currently taking two 500mg Hydrea tablets every day along with a 81mg aspirin and two 2.5mg Eliquis tablets every day. I have the JAK2, SF3B1 and SRSF2 gene mutations. The SRSF2 mutation is a splicing gene that shows up on the MDS side. My blasts are now 14. Lately my labs are awful. Way too many large red blood cells and way too many immature white blood cells. I’m having another BM Aspiration, molecular panel and a Koch procedure done on November 29th at Sloan. The Koch procedure looks for viruses and microorganisms in your bone marrow. First time I’ve ever had a Koch Procedure. Never heard of it until my Oncologist called and scheduled the BM Aspiration.

I hope you’re doing well and your symptoms are not getting to you. My major symptoms include fatigue and weakness in my legs. Nothing to complain about.