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Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: Dec 4 9:55am | Replies (1335)

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@delia74

Have had fibromyalgia for what seems forever, and I am presently 75 yrs old (although there are days that I feel decades older). I have lots of other health issues which also bring pain along with the factors, so there are days that it's a bit like blurred lines making it impossible to distinguish if it's he fibromyalgia or a cocktail combo of the other health factors. Nonetheless, pain is pain and I am very grateful for the days that I don't wake up hurting a lot. Generally, once I'm up, have had my hot café con leche, and have been moving for a while, the pain(s) ameliorate. As the day wears on, I may have to lie down for a short time b/c I literally feel like I'm a balloon with the air escaping, and I HAVE to get off my feet, lie down and feel waves of pain from toes to cranium, with not-quite-deep and non-restorative "nap". Hard to get up, but do so since I don't have anyone to make meals, etc. When pain is nasty, I do take an Aleve or two (the only med that I can take since ALL prescription meds and OTC items are a no-go). A hot shower helps tremendously! I don't give in and just do nothing all day, unless I am really ill and pain level is 8 to 9 out of 10. Rheumatologist who diagnosed the fibromyalgia over 30 yrs ago prescribed cyclobenzeprine 10 mgs and I continue taking it at night. Even with this muscle relaxant, I can and do still experience fibromyalgia pain separate from other pain issues. You learn to "know" your body and what it's telling you. As I said, I have several serious issues such as polymyalgic rheumatica as well as osteoarthritis and neuralgic pain issues. It is what it is, and I try to make the best of each day that is a "good day." I had been on amitryptline also but had to drop it (via a "weaning schedule" though, not cold turkey). Ami has been mentioned by some members on this site for fibromyalgia pain, as it seems to help them without adverse effects. Talk to your doctor about the possibility of at least the cyclobenzeprine. I absolutely refused Lyrica and Cymbalta since they do have side effects and I am highly sensitive to drugs such as those (any and ALL antidepressants).
The brain fog and confusion are sometimes tough to deal with. I truly do forget just what day of the week it is, no matter what I do to jog the memory. My iPhone and iWatch help with that! Appetite is oftentimes affected, and so are tastebuds. So many issues to learn to cope with! Just don't beat yourself down. Be kind to yourself. Find joy in each day. And best of luck in dealing with your difficult journey.

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Replies to "Have had fibromyalgia for what seems forever, and I am presently 75 yrs old (although there..."

Have you tried Lyrica? I have to take 150 mg am and bed but many times have to have one in the afternoon. I've been on it for years, only side effect is weight

Except for the meds, i am same at 76+; my 50 years instinct that drugs, i including OTCs - (astronauts took Actifed no-drowsy into space, "spaced" me out of consciousness) are not my friends, 2 ER visits, past & this summer for severe ADRs, gene test proved me right. can only tolerate the acetaminophen/ibuprofen, so that at night to help sleep. Also several "rares" that have no cure or effective treatment, so DIYing myself. The BP issue many actually be a cervical situation, not systemic (although have 2 likely suspects) so feeling need to go from NP to Osteopathic MD - like the integrated approach instead of just targeting. Have lost days - had to check TV guide to paper calendar (no-tech flip phone) on one occasion as same name shows both days; have city trash collection - more than once had to bring back due to Monday holiday for workers, but not me; spine issues can be helped by just laying down relieving physical stress - often take unintended, but refreshing naps. Seems the child of an anesthesiologist and public health nurse does not get any free passes! (but did get the familial dry wit and offbeat sense of coping humor - almost better than drugs. almost). Sorry we are in these messes, but grateful for the company.